Good to have your input. I am trying to very slowly expand my son's realm of activity, even if it is just to sit outside in the yard instead of in the house. I just check with him before doing something, and sometimes he will accept, and other times he chooses to not participate. This weekend he elected to do a little more. It went okay, tho I could see him struggling a bit by the time we got home.
I'm just taking it extremely slowly, since I have seen the negative impact that trying to make him go faster can have. I know I've said it in another post, I sometimes feel I am moving in slow motion with him, but if that's what he needs right now, that's okay.
@dibby, I wish my son would talk about his illness too, but - he just won't, and I'm not going to press it with him. I just give him another hug, and give positive feedback when he's doing well.