Tell us how you are today?


#825

Have you tried the LEAP method of psychology with him?


#826

We can generally get thru the L and E steps. It starts getting difficult at the A, because so often the ‘goals’ he brings up are really unattainable.

He worked with case management for a while, but it was kind of a fail. They want to work on concrete and obtainable goals. He doesn’t have those.


#827

I can imagine that this is very challenging. Do you think it is worth continuing to work toward? I have never even had the opportunity yet to talk about goals with our son due to his extreme illness, but I know that multiple times when I have listened, re-stated what he had just told me (“Let me see if I got this right…You said that …”, and “It is important to me to know what YOU think”), he immediately softened…it was so evident in his expression and demeanor…and was amenable to other things over time that eventually resulted in his taking meds (in institutional settings, mind you), even if he continues to say from time to time “I don’t think I need to take them” or “I already took them”. This is such a hard journey, but I refuse to give up! Keep hope!


#828

Re your post on LEAP and medication (in another thread):

My daughter talks to me maybe one sentence per day or two, five sentences is a miracle. I use LEAP, mostly by listening outside her door to what she tells her voices (spirits who live in the sky). Progress on other things than medication has been made with LEAP (like putting in a back door so she has her own entrance, and my giving her daily dinner made “with love” as she wouldn’t take food until I said it was “made with love”).

My daughter has seen a doctor voluntarily in her adult life only about 3 times for a severe obviously physical problem. She hates medicine. She had her teeth worked on without Novocain because of that hatred. Sometimes she likes vitamin supplements, but not for long or regularly. She was forced onto successful ap’s during the 4th hospitalization, but didn’t know she was relieved of schz symptoms and came off the pills, and when the shot wore off, she was back to square one with daily positive and negative schz symptoms which she cannot see she has.

I had to break down the LEAP method to really tiny things to make it work. But it does work to improve things, even with a loved one who barely talks to me.


#829

Tiny is good! I, too, could not use LEAP when son was mute! In my situation, our family has goals for our son, and our biggest goal right now is just to keep him out of the hospital as long as he is safe and getting meds and then we pray for relief from the “formal thought disorder”. But from his confused viewpoint, we have to put our creative brains on and constantly be aware of the little things going on at the time. Ex: "Would you like to shave today? You look so handsome when you are shaved! "

Also, rewards can be goals. Unless I choose not to pay for it, at the home where our resides at this time our son gets a small “allowance” when he gets up within a certain timeframe and takes care of his hygiene, shows up for breakfast. He gets it after breakfast when he also takes his morning meds. (I wish I could say he was good about this, but this is the idea and it works for most of the residents. The staff is fairly flexible and encouraging with him because he is so ill. I think he has lost or thrown away most of the allowance he has been given. Or someone has taken it. I’m raising this as a concern with the home soon. But he was proud of having a few dollars in his wallet when he had it.)

@oldladyblue You are an amazing mom “with love”!!


#830

Hi all!
Just another post, mostly for myself. Not in any sort of reference to anything else.

Today is another good day. I have much to be grateful for!

There is a hurricane coming toward the east coast, US. It should hit sometime Thursday and I have plans to visit my Dad, along with my girlfriend, my brother (whom has SzA), my sister, niece and nephew.
It will be a fun adventure from what I can tell.
My brother is packing and prepping his apartment, I expect that I will need to help him do some last-minute things when I pick him up. But I’m not concerned.
Thankfully, my brother is the type who becomes more reliable and rationally sound the more dire circumstances become. Packing up for a ‘vacation’ in the effort to evacuate should be a walk in the park for him. Even if it isn’t, I’ll be ready to help, as always.
My girlfriend is much more anxious, understandibly. She will be meeting my father for only the second time, and staying at his house for several days. I can ressure her that my family is loving and accepting all day, but the nerves will still be there about it. It gives me another opportunity to be a great boyfriend and a good brother.
I actually look forward to hurricane season for opportunities like these! Weird, right?

My brother will likely not get his prescriptions refilled before we have to leave. I’ve already told him not to be too concerned about it, as we can easily call in the scripts at a pharmacy near our Dad’s house. Still, I suspect that he might feel slightly defeated if he isn’t fully prepared at the time I come to pick him up.
I will simply remain positive, confident and reassuring. He will quickly see that his lack of preparation is no big deal in the face of teamwork and family bonds. It is one of the best qualities in myself that I can offer to the people closest to me, good intentions and solid teamwork.

I will make it a point not to be overbearing or coddling toward my brother. Being my younger brother, the instinct will always be there, but what he needs is independence and reassurance that he is welcome and valuable. I am certain that there will be many opportunities during this trip to demonstrate his strengths and his desireable qualities, just as there will be for me.

As far as my brother’s progress with his disorder,
He continues to build upon the tools he developed in group therapy. He is now only going to group 3 days a week, which seems to be unanimously agreed that he will soon move on to tackle new challenges.
He plans to attend vocational rehabilitation after we return to our home town and I am certain that he will use it to better himself and proceed toward gaining more independence and resillince, just as he has done with group.
I still am concerned about the possibility of him expercing delusions or overpowering hallucinations. I suspect that he deals with some symptoms at all times, despite his tough exterior. But, I will remain grateful for his progress for now.
I recommended that he seek an app to track his medication, but I don’t think he’s looked into it yet. I am fairly sure he still has trouble keeping track of doses and planning refills. But, as I have learned from past experience, pressing this issue too much just adds stress and doesn’t help. So, I will remain supportive and make the recommendation when he brings up the topic.

For myself,
I am seeking new opportunities at my company. I have a very big leap planned for this year, and may have a lot of homework to do in order to prepare myself for applying and interviewing. I am sure that I will need to earn at least one more professional certification, and possibly attend a couple of college courses.
And all that is just to qualify to start learning how to do the work. If I earn a spot on the team, only then does the real hardcore studying start!
Big dreams, big challenges!

If I am at all a good older brother to look up to, or a good son, or a good boyfriend, it is not because of my past accomplishments. It is because of my tenacity and awareness that I deserve to give myself permission to honestly try my best and fail as many times as it takes. I hope that mentality is infectious!


#831

How am I today? Pretty good, so far. I have just given my notice at one of my two jobs and will “semi-retire”. It was a difficult decision but the tipping point was the realization that I need to take care of myself and not continue to add stress to my life that I can’t control. I’ve worked all my life so it feels strange to leave a job and not have a plan for another to take its place.

Fall is coming and it finally rained, good for everything. My firewood is split and stacked and covered up. Apples and pears and plums are screaming for processing- applesauce and fruit butter and dried prunes coming up…

My son is doing very well in the hospital. He moved to a less restrictive floor and I can visit him on the unit. I got to see his room and how he keeps all his things (very neatly, unlike at home), meet his roommate and some of the staff caring for him. His recovery is a huge blessing for me.

So today is good. I count my blessings and am grateful for all of them.