So my son hasnt been diagnosed with sz, but delusional disorder.
After being discharged from hospital last year he has been on a Community treatment order and was on paliperidone depot.
Over the last few months he has been unsettled and starting to voice some of his delusions again. He openly now talks of hearing others thoughts, and asked me recently when I had a thought in my head was it my own voice I heard saying that thought or someone else voice? i had to really think about it and tried to answer as best I could. He says he needs to be able to read minds like some others can.
Anyway he has changed meds (again no insight) he is now on 200mg of zuclopenthixol (clopixol) and has had a test dose and two other doses, with this one he has it every two weeks as opposed to every month. Its a typical AS , paliperidone was Atypical.
He seems very apathetic, very slow and no energy, he sleeps a lot more, not sure how many hours he sleeps but he is in his bedroom for 16 hours per day. he also paces at night in his room before going to bed. I can hear him from my room.
I really struggle and feel so bad at times, its like he is having no life, its like he is only on the meds to give us respite, does anyone else feel like that? its been a year since I seen him without meds, well 16 months really. He wants to be off meds and off the cto, I am tired of it, he wears us down with the same stuff.
The tribunal is monday, to see whether he stays on meds and cto. His dr and nurse are recommending he does, i don’t know any more .
I feel at times like give him what he wants i.e. off it all as I see no real benefit .
He has no life, only goes out if its with us, he will shower every day, put same clothes back on too, what is that about, I’ve heard this before.
Again the dr said this med will take a little while to get into his system and if it doesnt work (what does working look like???) they could try clozapine, but its a no no as my son wont allow bloods taken, he heard from someone in hospital that they will sacrifice his blood and thats why he wont allow it, so rules out clozapine.
On a plus though he has agreed to see the psychologist , which he wouldnt before.
Sorry for the long post any comments, or advice is welcome.