My son’s current state is that he is basically all in with his delusions and reactive with them all the time and barely with us. His only response to us is to answer very basic questions and with that it may take several minutes of persistence to get an answer. His sleep is currently turned around but at least he is sleeping. He spends his time laughing at and talking to the voices, he moves his body in a way like he believes something is happening to him. Similar to the way he moved the one time he was afraid and believed he was being turned into a star. He walks back and forth opening fridge for no reason and turning the lights on and off. Now he is so guarded with his thoughts. His last thing he said about what hes thinking a few weeks ago was that he is talking to his future self. It’s like he forgot to stay guarded for a second and regretted it after telling me. He has suddenly became a vegetarian. We had no idea why he wasn’t eating for a few days and then eventually said he is done with animals and figured it out and have been preparing his food accordingly but still he has lost alot of weight and eating far less than he used to.
We thought he may have been doing a tad better with the recent increase in Thorazine. Maybe a slight bit more responsive and sleep had been going good. Now he has had another increase and I’m not so sure. It could just be the waxing and waning of things. My husband and I had been out of town for one night and he stayed at my parents so he could just be more off than usual but still it has been a steady decline.
It’s really hard because every where I read that non med compliance is such a huge factor for no improvement but he takes all his meds 100%. Of coursed managed by us.They are still talking about trying Clozaril again if Thorazine leads to nowhere. He’s at least not agitated or aggressive in any way. I really want to interact with him. I am home with him all day and he just can’t. He does ask for a drive each day and to go to Mcds for a soda. At least it’s something.
With that said I am hopeful that something will give at some point.