I’m feeling rather nervous about my son retrialing Clozaril. Reasons being that he had seizures which can be controlled with other meds, the vomiting, and the biggie that he ended stopping abruptly was arangulycytosis.
He has 2 psychiatrists. One is his prescribing and the other is consulting through an early psychosis program. The consulting Dr. consults with Dr. Cameron Carter a Shizophrenia expert and researcher at UC Davis. His prescribing Dr. isn’t as experienced as the others but is so attentive and I like him alot. He is a great listener and is open to other suggestions and communicates with the other psych.
Their recommendation after going over things is to start Clozaril again way more slowly and to go up to maybe no more than 150mg for maybe up to a year. The Thorazine calms things down some but he is not any less psychotic. I feel it would be foolish not to take the recommendation of these DRs but I am really nervous about the side affects. The Dr. also suggested us looking into Antroposcopic medicine(I’m sure I spelled that wrong). She said she wouldn’t suggest it to any other patient. It’s hard to hear because I think he is everyone’s worse off patient and they don’t really know what to do next. I do appreciate them not giving up though.
In other news, we visited a gym today that has hydrotherapy water tables and massage chairs. He LOVED the hydrotherapy water table. I think we will join just for that. I bet it helps with the tight muscles that can occur from the APs. There are also Total Body enhancement machines that as described sounds basically like a whole body shake weight. I’m not sure of its claimed benefits such as toning but I think these things will help him with needed sensory stimulation as he has Autism too. He loves to swing also and sometimes we will go to the park and he will swing when no children are around. My parents have a cabin in the mountains and they have a swing that’s perfect for adults. We went over the weekend and he swung quite a bit.