Hi jax…My heart goes out to you and all the pain filled stories on the board. There is hope…you have to create it though, and manifest it in every thought and word even though your logic knows all the tragedies that can potentially happen. Our son was diagnosed major depression November 2016, severe social anxiety in December 2016 and paranoid schizophrenia in March 2017, He was in his jr year at university. Fortunately, he and I have a very close relationship so I was privy to his thoughts as the disease went into full bloom and he trusted my conversations with him. Also, my husband and I were seeing an excellent psychologist at the time whom gave us a fab referral to a psychiatrist that had for 20 years run the downtown free clinic (major city) and done an excellent job there. The doc had serious experience with the homeless psychotic population and our son connected fully with him. Doc is a great chemist.
My shrink told me…“Don’t get on that roller coaster ride with him…” Great advice…challenging to maintain.
We brought our son home from college in March and I committed to being his ‘Rehab Coach’. We were in a position financially that we’d be ‘OK’ with my home business efforts part time and coach/caregiver. It took some getting use to living within our means and adding son’s needs/expenses. I know not everyone can do that.
After 6 weeks of throwing myself into research about the disease, I was angry. Angry that the medical industry knew as much about the brain as they did about the heart 150 years ago. There is however, great research currently going on thanks to Boomer’s parents getting Alzheimers and technology advancements. I read TONS of stuff…and our son was also very proactive in research. He often would ‘reddit’ some info, impulsively be ‘all in’ (which I am SO grateful for) and I would follow up with very thorough research. Having knowledge of exactly which areas of the brain get attacked by the disease and what aspects of being human these specific areas control, have allowed me to both understand why he’s doing what he’s doing AND equally important…which area, that day, was healing.
Being at home under low stress myself, helped me to turn on my own intuition full throttle…critical in knowing how to approach him, language I used, and well, basically manipulating him to continue to move in healing paths and behaviors. I felt ‘stages’ of healing. The first was 7-8 months, the second 3-4 months, the third 1-2 months, then he moved into a new ‘phase’. He is now Phase 2, Stage 1…thank God.
He takes Olanzapine, Buspirone, Loxapine, Gabapentin and Fluoxetine.
(Son gained 50 lbs in 5 months…even with my preparing all kinds of fresh fruit, veggies dips healthy healthy healthy). I describe the healing process to family and friends as a 3D printer creating a brain, layer by layer hundreths of millimeter thick, only this is a living organism that recreates cells every day. Some takes, some doesn’t, some takes and is lost, yet ever so very very slowly, improvement happens.
Son also takes Sarcosine, Acetyl L-Carnitine HCL, Acetyl L-Carnitine Arginate, L-Theanine, Iodine, Selenium, Chelated Magnesium, Alpha Lipoic Acid, Vit C (small doses throughout day), Folic Acid, Melatonin, D3, EPA/DHA(fish oil) 3 grams/daily and Lion’s Mane. Some of this info is on this site in the supplements/vitamins area. Others we had to research and discover.
And he meditated 2-4 times a day from the get go.
Even with all this, the progress was sooooooo incremental and slow UNTIL, son decided to start vaping PURE CBD oil in Feb 2018. Wow…it pulled everything together and advancement became noticeable and incredible.
One MUST get the CBD oil that has ZERO THC present…ZERO. THC and schiz spectrum very bad mix. Even if it’s the so called ‘innocuous’ THC types…once it is either heated or eaten and goes through the liver pass, the THC morphs to a different type that’s bad for schiz brain.
There are times where his conversation is like other 22 yr old male classmates of his. He is taking a computer programming class this summer, with special accommodations of a note taker, tests in a private room with extra time, and can leave the classroom if needs to.
He has worked with his Dad since October 17, part time, shooting photos for online sales. This was a hobby of his earlier teen years. And we started requiring rent (very low amount, but just to begin bringing him back into the real adult world)monthly plus a student loan kicked in, which he set up minimum amount. He has met those financial requirements for 7 months now.
We also found a psychologist that he likes and respects and added that to the mix in late February 2018.
We still have years to go…and it could all go to hell in a hand bucket at some point…Dad and I know this. However 7-8% of people with schiz spectrum disease walk away disease free at 5-10 years in the USA. In Western Europe it’s 25%, Or so I understand.
I cling to those numbers.
Gray matter loss…Trials are finding brain cell re-growth in Alzheimer’s and Stroke victims through use of hyperbaric chambers. Push for schizophrenia brain disease victims as well…
HUGE genome study done years ago with 100,000 people with schiz spectrum have these identifiers…frontal lobe, immune system, and calcium pass. WHY isn’t this info distributed as a preventative???
ADHD…don’t smoke pot until your 30!
IMMUNE SYSTEM problems…do they have ADHD also? Don’t take ADHD drugs until you’re 30! (home school or alternative school, holistic methods…Don’t smoke pot until you’re 30!
CALCIUM PASS…not really a preventative there…has to do with the heart disease the spectrum can develop.
I understand that my knowledge and situation applies only to Paranoid-Schizophrenia. I am also NOT a professional, so things expressed as my opinion are just that! Hopefully something will help in this recount. Please send a message if you have a question.