Barbie, thanks for your response.
While there is some information on the internet on the reasons to create a Special Needs Trust (as your postings detail) and information on the procedure for creating one, I have found almost nothing about the experience of living with a SNT. That is really the nexus of my original posting.
I’d like to know how the trust worked for the beneficiary over time.
did the original administrator accept and maintain responsibility for the trust over time?
what kind of demands were placed on the administrator (time, emotion, stress)?
did the beneficiary actually realize significant benefit from the existence of the trust?
what were the benefits of the trust, in actual experience (as opposed to expected or hypothetical)?
at what rate were funds disbursed from the trust?
given the option, does real world experience with the trust indicate that it would have been helpful to have more detailed provisions in the establishment of the trust to limit or expand the administrator’s authority?
It would be a great help to me if someone could address even one of my concerns. We, as parents, experience the trust as the creators, but how the trust actually plays out after our passing is obviously something we cannot evaluate ourselves. Perhaps this is not really the ideal forum to find these answers, since the trust administrator may often not be a parent, and a non-parent administrator would not be reading on this forum.
I hope I’m making sense.
Thanks to all who participate in this forum. I wouldn’t know where to turn without you.