I’m so sorry for the loss of your son, Stan, and thank you so much for your contribution.
I think many, if not all of us on this forum, would agree that we cannot do this alone. Fortunately, many of us aren’t. But, the sad and difficult reality is that many of us have ill children/siblings/parents/spouses that don’t even know or believe they’re ill, so they refuse to participate in any treatment at all, never mind multi-disciplinary treatment. As perhaps you know, this symptom called anosognosia effects so many people with Schizophrenia. Then, of course we have the HIPPA laws that virtually prevent family from helping their sick family members over the age of 18, by being part of the treatment team, unless the sick person agrees to a waiver of those laws.
Earlier, our child did agree to participate in one of the first episode psychosis programs you mentioned in your post, but he now refuses any and all psycho-therapy, either individual or family, and he will not contact or see his community psychiatrist. The only reason he is on monthly injections as we speak is because he was recently discharged from the hospital with a multi-month prescription from his in-hospital psychiatrist. That prescription will end soon, so who knows what will happen then.
Again, I’m so sorry for your loss. I wish you could’ve had a better outcome for your child. I wish we all could. Laws need to change.