This is a very rare condition - and so there is a lot of money going into it regarding schizophrenia research. I recommend you contact the NIMH (National Institutes of Mental Health) to find out what research that you can participate in with your daughter. This is usually the best way to get really good free treatment.
Here is a link:
We’ve heard from other families here who have said that they’ve gotten great support from Judy Rappaport one of the top researchers in this area. Give them a call and see what might be available and what resources they recommend
http://www.nimh.nih.gov/labs-at-nimh/principal-investigators/judith-rapoport.shtml
Magnuson Clinical Center, Room 4N244, MSC 1600
BETHESDA, MD 20814
Phone: +1 301 496 6080
Fax: +1 301 402 0296