Family and Caregiver Schizophrenia Discussion Forum

14 year old son recently diagnosed with scitzoaffective disorder


#1

We feel completely uneducated and helpless in helping our son deal with this disorder.


#2

Hi! and welcome to the forum.

http://www.mayoclinic.org/diseases-conditions/schizoaffective-disorder/basics/definition/con-20029221

Please look at these sites:
http://www.leapinstitute.org/ - under resources are free videos on using LEAP
LEAP is a way of communicating to build trust. Listen-Empathize-Agree-Partner.

http://dramador.com/ - Dr. Xavier Amador is a clinical psychologist whose brother had schizophrenia. He is the founder of the LEAP Institute. Wrote the book: I’m Not Sick I Don’t Need Help! Can buy from his website.
Search Xavier Amador and LEAP on youtube.com and you should find some long videos

http://www.treatmentadvocacycenter.org/index.php - under problems you will see anosognosia
Anosognosia looks like denial but is different.

http://lesswrong.com/lw/e25/bayes_for_schizophrenics_reasoning_in_delusional/ - helped my understand delusions

http://www.nami.org/ - National Alliance on Mental Illness.
http://www.schizophrenia.ca/ - Schizophrenia Society of Canada

Can also find some very useful information here:
http://schizophrenia.com/

Early Psychosis Treatment center information in these two links
http://www.schizophrenia.com/earlypsychosis.htm
http://www.raiseetp.org/sites/
http://psychosisprevention.org/get-involved/education-center/finding-treatment/

Psychiatric Treatment Centers affiliated with Medical Schools in the USA
http://www.schizophrenia.com/psychcenters.htm

This link may help you find a psychiatrist in your area
http://psychiatrists.psychologytoday.com/rms/prof_search.php

I know that this can all seem pretty overwhelming… It is overwhelming :blush:

The earlier the diagnoses and the sooner he starts treatment should make it easier in the long run.

Ask whatever questions you have and our members will do their best to answer them.


#3

It is so hard to understand what he is truly experiecing and what is a “typical teenager” behavior.

He has struggled horribly at school with social anxiety and often feels like he wants to die (not suicidal) just doesn’t care to go on.

He was hospitalized in August, when he was diagnosed, for 8 days.


#4

**Welcome mom1~
@BarbieBF gave you some great resources to look up-and there is a lot if good information on this site also.
I know this is VERY hard to deal with! It would be great to have some support from a local group. It`s really needed for you and your son.
Check out the forums here-gives you a lot of perspective.
Come back here anytime–this has been a life-saver for me! **


#5

Welcome mom1!My son is 13 and has psychosis-psychiatrist suspects he has early stages of schizophrenia.All of the resources BarbieBF provided give excellent info.Our family has really struggled to deal with this and help our son.It has been hard getting help due to how young he is.You are not alone+this forum has wonderful people that will give you ideas if you need help.Hang in there!


#6

Welcome @mom1. My life was a chaos in my teens. Started hearing voices and having delusions when I was 15. I was suicidal. But this illness goes up and down. Better days and worse days.

Keep an eye open for drugs. I know many teens with mentall illness try drugs to make everything go away. I did too. I smoked and got stuck on alcohol and later on morphine.

Be calm, not saying your son is doing drugs. I just want you to be aware of the risk.