Advice needed for the daughter of the undiagnosed


#1

Without typing my entire life story into this post, I am the 22 year old daughter of a 60 year old, uninsured, undiagnosed sz woman. I have a 9 month old daughter, who is the only person who is completely innocent in her eyes but she accuses my friends of molesting her… as disturbing as that it.

I would like to tell myself that she doesn’t have sz but deep down I know it and I know if I told anyone in the sz community, you’d all confirm it.

I guess I just need advice… she doesn’t have a job and has been searching for one for years, her car is getting old, and I am just watching her become less and less functional. I don’t think I can force her into assisted living… or even to the doctors for a diagnosis for that matter.

Any resources or similar stories would help


#2

Welcome to the forum Kelly.

The best resources I can give you are these:

http://www.leapinstitute.org/ - under resources are free videos on using LEAP
LEAP is a way of communicating to build trust. Listen-Empathize-Agree-Partner.
http://dramador.com/ - Dr. Xavier Amador is a clinical psychologist whose brother had schizophrenia. He is the founder of the LEAP Institute. Wrote the book: I’m Not Sick I Don’t Need Help! Can buy from his website.
Search Xavier Amador and LEAP on youtube.com and you should find some long videos
http://www.treatmentadvocacycenter.org/index.php - under problems you will see anosognosia
Anosognosia looks like denial but is different.
http://lesswrong.com/lw/e25/bayes_for_schizophrenics_reasoning_in_delusional/ - helped my understand delusions
http://www.nami.org/ - National Alliance on Mental Illness.
http://www.schizophrenia.ca/ - Schizophrenia Society of Canada

Can also find some very useful information here:
http://www.schizophrenia.com/

Early Psychosis Treatment center information in these two links
http://www.schizophrenia.com/earlypsychosis.htm
http://www.raiseetp.org/sites/

Psychiatric Treatment Centers affiliated with Medical Schools in the USA
http://www.schizophrenia.com/psychcenters.htm

This link may help you find a psychiatrist in your area
http://psychiatrists.psychologytoday.com/rms/prof_search.php

Perhaps between NAMI and an early psychosis treatment center they will be able to guide you into getting your mom to accept some form of treatment.


#3

Welcome! I would just like to ask: What about your father? Hope I`m not sounding nosy! Are you able to stay away from her for awhile-or are you the caregiver?


#4

I would also just like to say that you could read a lot of posts here–maybe that would help. Sounds like she needs help but a doctor would have to take a look. So sorry…


#5

I am her only child, and family member in the state. My dad lives a state away and since they have been separated for about 21 years now, he doesn’t show any interest in taking responsibility for her. She lives on her own about 10 minutes away from me which has it’s benefits and struggles.

I guess I’m just coming to a point where even if I’m not with her, I’m worrying about her. I always feel guilty for not spending time with her when I’m busy and I know that when she’s alone, there’s a greater chance that she’s upset or paranoid.


#6

Looks like Barbie gave you some great resources. For both of you. I know it`s hard. I am always thinking of my son. Hang in.


#7

Are you sure this is Sz. Maybe she has dementia or alzheimers. My dad had alzheimers and was very paranoid at times. You need to do what ever you can to get her to the doctor. I wish you the best.


#8

How long has your mom had sz symptoms? dontforget623 suggestion about dementia or alzheimers could be a possibility. Does she see a family doctor? If she does then maybe you can go with her or call them and speak to them about your mom’s condition. I know that privacy laws seem to exclude this but they are allowed to listen to family member’s concerns even if they can’t give you information. If they can deem your mom unable to make certain decisions on her own then I think they can discuss her case with you.

http://forum.schizophrenia.com/t/hipaa-at-a-glance-us/2298?u=barbiebf

Getting your mom diagnosed is probably the best first step. Once that happens you can look into getting some sort of guardianship that would allow you to make decisions for her.


#9

Welcome to the forums Kelly. I don’t know if your mom has sz or not. She may be paranoid about someone interfering with your 9 month old daughter but there is a lot of paranoia in society about molestation so this paranoia is probably the norm for society, except people don’t say it out to people

Does your mom display any other signs such as believing crazy, bizarre things, eg people are plotting against her or does she hear voices or get messages off the tv/radio.


#10

She has been paranoid about a significant amount of people/situations/things since 2001 (or around that time). She does hear voices or a voice…that she refers to as a ghost. She also hears voices in appliances… like her own fridge’s electrical hum.

She does not have health insurance and I can describe the anxiety I have forcing her to get evaluated. She has a rash that she has been picking at for a couple years and it was HELL taking her to the ER. She couldn’t explain herself properly and they must have known she isn’t completely mentally healthy because we were locked in a ‘pod’.


#11

I’m in a similar situation. My mom is ok though. Maybe you should look into getting a caregiver to come to the house.


#12

My mom has good days and bad days. For example, she found a temporary position in an office and worked there for 4 days, without me even knowing. Someone broke the cellphone rule and my mom tried to inform whoever it was in charge, and apparently the person using her phone said all sorts of nasty, rude things to my mother so she quit…

In most situations, it ends with someone saying or doing something that never actually happened. Does anyone have an resources for someone who could clearly lay out my options for me? I feel like it would be impossible to get my mom evaluated in a peaceful manor.


#13

Hi Kelly,

You asked “does anyone have resources to clearly lay out your options in this situation”. Personally I think you should re-post this question in a new thread as people on the forums will be aware of your question/position. Its just that your final comment in this thread in unlikely to be read by the masses. So, re-post it…

As for your mother, I would say for you to contact a local psychiatric hospital and ask them for advice. Other than that just re-post the topic/question and others more clued in on this forum will be able to help you.