I hope I caught up with everyone!
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I am sorry you found out about his death just a few days ago online. I hope you understand that you are not to blame in any way. A personās life, and death, is a sum of the choices they make for themselves.
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[quote=āZombieMombie, post:18, topic:6182ā]
Or did. This past month with the new higher dose of Invega I am dealing better and using some suggestions from my therapist.
[/quote]vega
this is a medication question.
do you remember how well you did with 156mg Invega. Also are you taking another medicine with Invega like mood stabilizer ( Lithium, depokate,etc) or any other medicine?
Yes I remember. I wasnāt well on 156. I am supposed to take lamictal but I donāt and havenāt since I felt flat.
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Thank you for your reply.
My son is 41 years old and I thought he was doing pretty well on his latuda but it seems heās having some break through auditory hallucinations. It manifests by him breaking iPads TVās cell phones kindle and it has become depressingly costly.
His birthday is this week and after a discussion w him I bought Another cell phone at $150.00
He had been using mine but it is a nusciance for both of us.
I asked him to let me know if he starts hearing voices and I would confiscate electronics for their protection. He told me - it doesnāt work that way.
I will call and leave a message for the nurse at psychiatrists office just to see if he can be seen for med adjustment.
I pray to God there is some answer for this because it has cost about 4 -5 K over the past 2 years.
Thanks for listening.
A mom who loves her son.
Terry.
Hi @Terry
Iām also a mom and I love my kids. Here is what you doā¦stop buying anything for him to break. Thatās the most simple and most effective way to stop this. Tell him if he breaks anything he doesnāt get a replacement. Ever.
We donāt reward children for their bad behavior no matter their age or disability. Even voices. Voices in this instance are the same as severe peer pressure from people and we wouldnāt replace a phone if a kidās friends told them to break it.
Thatās the only honest way to solve the problem for sure. And no, it isnāt punishment for being sick it is correction for unacceptable behavior.
And donāt let him use your phone. If he wants one he needs to buy one himself or take care of the last one you give.
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This seems like a place someone can help me - here goesā¦
Someone very close to me disappeared from my life. And in doing so caused me a lot of pain and a lot of issues.
20 years later they have just got intouch and have told me they have a diagnosis of paranoid schizophrenia. They didnāt have this before. They want to meet me to give me answers. I want answers, Iām angry with they, upset with them, hurt by them. I want to know why they treated me in such a way.
However with this diagnosis I donāt want to cause them pain. I understand they have been sectioned many times. Do you think someone with this illness could manage such a meeting?
I donāt know.
Sorry to not have a real answer. This disease is so varied that the person may have insight or may be suffering from symptoms where they need to explain every move they make.
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Hi I could really do with abit of guidance . My son has just has his first shot of palperidone 100mg? Itās now a week in . Heās having trouble sleeping headache and stuffy nose ā¦back and neck painā¦is this a normal side effect does it get better with time . His thoughts are much less jumbled so positive from his mental health side . Best wishes to you
I never had those sort. I started off at 156 invega and had no symptom reduction. 234mg once a month helped me and now itās moved to every 3 weeks.
I felt awful with the 156 but thatās because I needed a higher dose and my disease manifested in a lot of physical pain from stress.
One thing to watch for is when the shot begins to wear off old symptoms come back. It can be very jarring. When mine wore off I heard things again. It is why we went to 3 weeks.
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Iām pleased to hear your doctor would make the decision to move the doses closer to help avoid the drop-off. While the typical schedule may be best for a lot of people, we do read here about people for whom the dose doesnāt last the whole 4 weeks, resulting in problems which you must have had, but doctors can be close-minded about going off a standard treatment path for the best of the patient. Yay for you getting the results that give you a better life!
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Thankyou for your advice . Iām wondering if he has flu as he saying heās hot and canāt cool down . I will monitor and report to his nurse at next shot date . Maybe he needs a lower dose as he hasnāt sept for a few days now and headach for past 2 days . Great to know you doing well
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Agree. I will stop giving those things to him. He is being manipulative e me because he wants to use my laptop.
He is smoking in the house and ruining the shared sir. Stopped his meds recently until I let him use computer. I wish there was a place other than here that he could go.
I
Feel like I am trapped by this awful situation.
Thanks for listening.
Terry.
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Hi, as a mother of an afflicted one, I would say that you should have the meeting, in a safe public place where you each come and leave on your own. It probably took a lot, and I mean a LOT for this person to reach out to you after the illness took so much from them (and you).
Because you want answers, and they are finally ready to give them, I think it will be healing for both of you. My daughter went to visit two of her childhood friends after the illness hit her. It appears to have helped her to move on.
Good luck.
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There are a lot of alternatives that one can take instead of AP. My daughter was prescribed Kali Phos., which is a homeopathic and she is improving every day.
Profrontal also works great for her. Not everyone has to be on the PS. My daughter responds well to a lot of things. Her problem is that she had no insight.
My daughter has her own phone on my account. When she was making 100 calls a day to the same person I would block her by using an app provided by my verizon carrier. Works perfect. I can even stop her from having any calls. I did tell her that I was sorry but I had no choice and I couldnāt let her abuse others.
Btw, alternatives work great. Now my daughter is progressing every day on Kali phos 6x, 3 times a day. A great homeopathic for brain repair.
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I recommend amyloban. But Iād stress that there are no replacements for APs.
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It has been a long time since you posted. I hope this thread still open. I want to get some advice. My son is now 17 who started his auditory and visual hallucinations since last year. He refused to see doctor and take medicine. He is trying to finish his senior year. I am really worry about his symptoms will get worse. I think it just started so he can act normal. Is involuntary hospitalization a good idea to get him on med or I should let him try to finish his high school.
I would try my best to get him on meds and worry about school later. I tried doing school while symptomatic and it really negatively affected my grades and experience. It may be hard to get him in the hospital but my parents just repeatedly asked me and eventually I gave in. Does he have a history with a therapist or a psychiatrist? If he does and you are in a developed country look to see if your state, city, or county has a department of mental health and apply for a case worker to keep tabs on him and they can hospitalize him without the police involved if he needs it. It may be hard to get him in the hospital if he isnāt having a total break from reality but any way you can get him on meds is good. Stay persistent about trying to get him on meds. There are a lot of people on the diagnosed forum that are doing well with meds and we gladly take them.