I’m sure this has been covered a zillion times but since I’m new I’m going to ask for some advice. The social worker called today to ask us what we would have to see in our son for us to be ok with his being discharged. Now mind you, he cannot tell you where he lives, he does not talk to the dr directly and tries to walk about of the room, he doesn’t remember seeing us or having family meetings, he can’t tell you who his nurse is or his brother and sisters names. He echos, paces and is having auditory and visual hallucinations. And we answered that they should tell us when they see enough changes then they should come to us and we will tell them at that point if we feel he is ready to come home. Because right now he cannot. I cannot care for him at the level of care that he needs.
However, reading some of these posts there are many people who are living at home having hallucinations, paranoid, non verbal/non sensical, not taking care of themselves well hygiene wise and struggling with other symptoms he has. At what point is it ok to say this is going to be a ‘new normal’ and go home? When they have never been the normal before. A total lack of cognitive skills as well, but these things don’t seem to concern the hospital. They scare the living wits out of me, because I’m his primary caretaker and he is closest to me, so when he was home for the first month in his acute psychosis I never went out. If I tried to go out he would stand there and cry until I came home or tried to follow me out to the point the housekeeper would stop working lock the door and stand in front of it so he could not leave. (thank goodness she hasn’t quit yet, but I’m worried about it!!) I can’t imagine having him home like that again. Where he has to be lead everywhere like a child, dressed like a toddler and hand fed. Do they really send home the kids/adults like that? I’m terrified they are going to because they say we are so educated and supportive. I’m not going to pretend not to be so they will keep him but I will admit to being tempted!! Maybe if they felt we were ignorant about things and unsupportive they would keep him longer? I have no idea. Has anyone been sent home at a point they felt was far, far too early to be truly safe? And how did your family, or how did you, if you are the family, handle things?