Wow, that’s got to be rough. I hope that things work out for you both.
Hi - the good news is that the National Institute of Mental Health is very interested in people like your daughter because schizophrenia is quite rare in these younger people - and so they have special programs to get her the best of evaluation and care (for free). I recommend you call them at this link below:
There is a good “webminar” on their research here:
Judith Rapoport is a world-renowned researcher in this area and we’ve heard very good things from other people who have participated in this research:
http://www.nimh.nih.gov/labs-at-nimh/research-areas/clinics-and-labs/chp/index.shtml
Also - there may be early psychosis evaluation and treatment centers close to your home - so that is another thing to research - they provide very good, (typicallly free) care.
I know this is an old conversation… but KBMOM please reach out to me if you read this. My daughter was just diagnosed with the same thing at 10 is currently inpatient x 8 days. amandabethjohnson@gmail.com
This is a very rare condition - and so there is a lot of money going into it regarding schizophrenia research. I recommend you contact the NIMH (National Institutes of Mental Health) to find out what research that you can participate in with your daughter. This is usually the best way to get really good free treatment.
Here is a link:
We’ve heard from other families here who have said that they’ve gotten great support from Judy Rappaport one of the top researchers in this area. Give them a call and see what might be available and what resources they recommend
http://www.nimh.nih.gov/labs-at-nimh/principal-investigators/judith-rapoport.shtml
Magnuson Clinical Center, Room 4N244, MSC 1600
BETHESDA, MD 20814
Phone: +1 301 496 6080
Fax: +1 301 402 0296
My son is 14 and says the same of his hallucinations/voices. He is lonely without them. He is doing much better since the meds got rid of or quieted them. He can concentrate more and seems happier.
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