I feel like my aunt is okay with me sacrificing my life as long as it doesn’t affect hers

I feel like my aunt is okay with me sacrificing my life as long as it doesn’t affect hers.

I’m 26 years old, living in London, and I’m an only child. I currently stay with my mum in her council property and help care for her. My mum is 56 and has severe treatment-resistant schizoaffective disorder. She also has diabetes, mobility problems, and other physical health issues. I have reached complete burnout.

For years I’ve been dealing with screaming, verbal abuse, manipulation, constant crises and phone calls, stress around food and household issues, uncleanliness, financial strain, neighbour problems, and feeling like my entire life has revolved around adapting to my mum’s illness.

My mum has no teeth and frequently chokes on food. Ambulances have been called multiple times over the years because of it. There have been countless nights where I’ve been unable to sleep because she’s been awake shouting, screaming, causing noise, chaos, and mess.

Another thing that has completely drained me is the constant cycle of my mum deciding to stop taking her medication, things spiralling out of control, professionals getting involved, things eventually settling down, and then the cycle repeating itself again.

My brain is completely fried from this experience. Years of stress, crises, sleep deprivation, anxiety, and constantly being on alert have taken a huge toll on me. I replay incidents in my head. I get flashbacks to some of the worst episodes. My anxiety is through the roof. I don’t feel like the same person anymore.

I also have ADHD myself and I’m completely burnt out. My concentration is terrible and I don’t feel capable of working right now.

I usually work from home, but because of everything that’s been going on, I’ve struggled massively and recently haven’t been working.

One thing that really got to me was my aunt making comments about how she works from home and doesn’t have any problems.

What frustrates me is that she is comparing working from home in her own quiet house to working from home while living with somebody with severe treatment-resistant schizoaffective disorder. These situations are not remotely comparable.

I’m trying to work in an environment with screaming, crises, constant interruptions, chaos, stress, neighbour complaints, ambulance call-outs, medication issues, and all the other things that come with my mum’s illness.

There have also been incidents that added to the stress. At one point my mum hid my passport. Situations like that might sound small on their own, but when you’re already dealing with everything else, they become overwhelming.

I often don’t even feel comfortable using the kitchen because of some of my mum’s behaviours around food, hygiene, and household items. There have been times where I’ve avoided parts of the house because I don’t know what state I’m going to find them in.

I’m also still recovering from pericarditis during all of this.

My mum is already under a Community Mental Health Team and already has a care package. Carers come twice a day, but they mainly oversee medication and occasionally wash dishes. The reality is that most of the burden still falls on me.

I’ve also previously discussed supported living with my mum’s care coordinator. I was told there wasn’t much point because my mum already has a council property and that supported living often doesn’t provide much more support. The focus felt like it was on the fact she already has a council home rather than on the reality of what living with her is actually like.

Another thing that has really got to me is that there have been times when I’ve felt blamed for the state of the house.

My mum’s illness causes a huge amount of disorganisation, clutter, and chaos. Yet I’ve had my aunt, carers, and even my mum’s care coordinator make comments that left me feeling like the blame was somehow being placed on me.

What frustrates me is that people see the result of severe mental illness but then seem to expect one person to somehow manage all of it.

My aunt knows exactly how severe my mum’s illness is because she has dealt with it herself for many years. She understands it fully.

But she has distanced herself from the situation.

My mum has never been invited to her house. We’ve never been invited there either. Neither my mum nor I even properly know where she lives. When my mum calls her, she often finds a reason to end the call. Whenever help is needed, I hear, “Why can’t he do it?” meaning me.

One thing she often says is that if she didn’t live over an hour away in Kent, she would help more, take my mum in, or be more involved.

The reality is she barely helped even when she lived closer.

There have been many times where she says, “I’ll talk to your mum,” and nothing changes. Or “Just pray.” There have been times where she has laughed when I’ve said how much I’m struggling.

One thing that really disgusted me involved my mum’s clothes.

My mum hoards clothes and buys new clothes she never uses, which contributes to a lot of clutter in the house.

My aunt suggested taking some of the clothes to her house and said that maybe one day my mum could come and get them.

The problem is that neither my mum nor I know where she lives and she has never invited either of us there.

When meaningful help is needed, she’s nowhere to be found. But suddenly when there are bags of clothes available, she wants to get involved. That didn’t feel like help to me. It felt like somebody taking advantage of the situation while making it look like they were helping.

Recently I told my aunt I wanted help finding my own accommodation because I don’t think I can continue living like this long-term.

Instead of support I got:

“You’re a single man. The council isn’t just going to give you a place. Rent is expensive. You should move with your mum so she can get a two-bedroom.”

She has also said that maybe one day I could buy my mum’s council house.

To me that basically sounds like: stay here. Keep being the caregiver. Keep putting your life on hold. Build your future around your mum’s housing situation instead of building a future of your own.

What hurts isn’t just the housing comments.

It’s the fact that everybody else gets to live their own life while I stay here carrying this burden.

At times it feels like my aunt will do everything she can to keep me in this situation. Every time I talk about independence or moving out, I get reasons why it won’t work, why it’s unrealistic, why I should stay.

It feels like I’m being pushed to stay in a role I never chose.

One of the things I find most jarring is that this isn’t coming from somebody who doesn’t understand how bad things are.

She knows.

She has seen it.

She has acknowledged it in the past.

That’s what makes it so frustrating when she downplays what I’m dealing with or acts as though my situation is somehow comparable to hers.

I also struggle with advocating for myself. Because of that, I’ve often struggled to advocate for my mum as well.

I’ve seen situations where I felt my mum wasn’t getting the support she needed, or wasn’t being treated properly, and I stayed quiet because I’ve always struggled with confrontation.

Looking back, I think that’s one reason so much of this has gone on for so long.

But I can’t do this anymore.

I’m burnt out.

My physical health has suffered.

My mental health has suffered.

My ability to work has suffered.

I feel like I’ve sacrificed years of my life to this situation while other family members have been able to move on with theirs.

My mum is currently in hospital under a Section 2, and if I’m honest, part of me feels like I’d be foolish not to use this opportunity to try and change my situation.

For the first time in a long time, she is somewhere with professionals around her 24/7 and the responsibility isn’t falling entirely on me.

I’ve spent years putting my own life on hold while dealing with crisis after crisis. At this point, I don’t want to look back in another five or ten years and realise I stayed in exactly the same position because I was too afraid to make a move.

That’s part of why the comments from my aunt affect me so much. While I’m trying to figure out how to build an independent life, it often feels like the message I’m getting is to stay where I am, keep carrying the burden, and continue sacrificing my future for a situation that has already taken so much from me.

Has anyone else had family members who fully understood how bad the situation was, but still seemed perfectly willing to leave you carrying most of the burden?

Also, if anyone in London has experience with housing options, carers support, Adult Social Services, supported accommodation, homelessness applications, or any route that could help someone in my position build an independent life, I’d really appreciate hearing about it.

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I agree that you’ve done enough and deserve a life of your own. You’ve done more than your share when it comes to taking responsibility for your mom. Ii I were you I would take full advantage of the internet and look into housing options for your mom. Do searches on ‘mental health housing’ and ‘supported housing’ and ‘adult care’ and anything else you could think of. I live in America and if I was in your position I would use my case worker to find help for your mom. Here in California one of the main functions of a case worker is to find helpful resources, federal or here in the community. Maybe they have this in London too.

You mentioned a Community Mental Health Coordinator, I would keep pressing them about getting help for your mom. Did you explain to them that despite having a council house she can’t take care of herself? After all what’s the point of having your own home or apartment if you can’t take care of it or yourself? Maybe you can put more pressure on the care coordinator to help your situation. Like they say, “The squeaky wheel gets the grease.” There has to be some kind of help out there for you. Are the carers doing their job, are they supposed to be doing more than they’re doing presently? You need the burden of your mom off you. It won’t do anybody any good if you get sick mentally or physically because of the situation with your mom and you can’t take care of her. You sound like a loyal kind of person; your aunt does not. It’s her own sister and her own nephew and she won’t even help, even just a little to take the full burden off you? She doesn’t sound like a very good person. Yeah, I would do some searching online for help.

Here’s some info. You can see the question I asked ChatGPT at the top starting with “What does a person in London…” You can ask similar questions.

Here’s what chatGPT says:

what does a person in London do when they are the sole caregiver for a treatment resistant schizophrenic mom who has intense symptoms and the caregiver needs help with his mom

If someone in London is the sole caregiver for a mother with treatment-resistant schizophrenia and is becoming overwhelmed, they do not have to manage this entirely on their own. There are several avenues for support in the UK.

1. Contact the mother’s mental health team

If the mother is already under the care of an NHS Community Mental Health Team (CMHT), psychiatrist, or care coordinator, the caregiver should tell them explicitly:

“I am the sole caregiver and I am struggling to continue safely without additional support.”

Mental health teams can sometimes arrange:

  • Home support

  • Community psychiatric nurse visits

  • Social worker involvement

  • Day programs

  • Supported living assessments

  • Respite services

  • Reviews of medication and treatment plans

For people with severe, treatment-resistant psychosis, specialist rehabilitation and recovery services may also be available. Some London NHS trusts have dedicated services for complex, treatment-resistant psychosis.

2. Request a Carer’s Assessment

Under UK law, unpaid carers are entitled to a Carer’s Assessment through their local council, regardless of how many hours they provide care. The assessment focuses on the caregiver’s needs, stress level, ability to continue caring, and what support might help. This can sometimes lead to:

  • Respite care

  • Practical support

  • Financial assistance

  • Training

  • Support groups

  • Help with future planning

3. Ask for a Care Needs Assessment for the mother

Separately, the mother may be entitled to a Care Act assessment from the local authority. This can identify eligibility for:

  • Home care workers

  • Day services

  • Supported accommodation

  • Personal budgets

  • Other social care support

4. Look for respite and community support

Several London organizations provide support for people with severe mental illness and their carers, including respite and home-based assistance:

5. If there is immediate risk

If the mother is:

  • Severely psychotic

  • Threatening harm to herself or others

  • Unable to care for basic needs

  • Experiencing a mental health crisis

the caregiver should contact:

  • The local NHS mental health crisis team

  • NHS 111 and select the mental health option

  • 999 if there is an immediate danger

6. Caregiver support matters too

Research and lived experience consistently show that caring for someone with chronic psychosis can be exhausting and isolating. Caregiver burnout is common among family members supporting people with schizophrenia.

If the caregiver is feeling unable to continue, that information should be shared directly with professionals. Mental health and social care services generally take statements such as:

“I am reaching the point where I cannot continue providing all of this care myself.”

very seriously because it indicates a risk both to the caregiver and to the person receiving care.

If you can tell me:

  • Which London borough they live in, and

  • Whether the mother is already under an NHS mental health team,

I can point to the specific services and contact numbers that would be most relevant.

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I am so sorry you are going through all of this! Of course you can’t work from home in a situation like that.

If people aren’t there experiencing it or have experienced they don’t understand like your aunt, she has a quiet place to work and you’re quite literally trying to work in a war zone.

I can relate to a lot of what you have said with our loved ones are in a heightened state it’s very hard to live around.

I’m happy for you that your mom is having 24/7 care right now, yes this would be a great time for you to think about what you want to change.

Yes I can also relate to family members knowing exactly what I’m dealing with but not being able to help much.

Unfortunately most of my family members have tried to help in the past but at this point they’ve had to distance themselves.