but how can someone ’ learn to become their own advocate ’ if they are not able to learn or focus or remember anything to begin with because of the meds ?
My son was diagnosed 2 years ago now and is now 23 he just got his own apartment and only has to pay 30% of his income (ssdi) he is excited and i am excited and happy for him hes our oldest child .
I want him to to be as independent and as happy as he can possibly be in this life and i feel that more than ever before right now he needs me he needs help taking his meds or he will forget he just cannot concentrate or focus at all on anything i come over and clean organize and do his dishes hes very very forgetful and seems spaced out but i know he enjoys having his own space so i want to help him keep that but also important is a social life and relationships with people , and attaining that is difficult in his present state so there needs to be a change but noone seems to care about these things it seems except me and his father …
he was living in a temporary type group home after he was hospitalized there is a 6 month limit to staying there however he was there on 2 separate occasions after he was first hospitalized after hearing voices and then while there he got ahold of some over the counter meds and took them all trying to kill himself .
went back to inpatient for about 2 weeks and discharged back to this place for another 6 month stay and like i said now he is in his first apartment hes excited for the future but he is still very spaced out still very forgetful and needs a lot of attention and redirection which im ok with if this is apart of his illness i will take care of him and just try to make his life the best and the most fulfilling and do what i can to help him be as happy as possible .
BUT im very frustrated with the doctor hes too buisy he doesnt really care enough or pay enough attention to how my son is acting he has a lot of patients his caseworker says that he " just needs to learn to become his own advocate " but if someone is over medicated and does not have the ability to concentrate on anything how can they become their own advocate or communicate that to a doctor even if that doctor did have an interest in working on adjusting his meds ?!
physically he is an adult and in theory adults are expected to be able to make their own decisions regarding their care but what if for some reason that is not the case what if mentally an adult is just not capable of doing that for some reason and is not able to advocate for themselves because they are being grossly over medicated and their doctor is being negligent in their care what do you do then???
is it possible to switch doctors when you are on medicaid just for thinking the care you are getting is wrong if so how can we do that ? has anyone had a similar experience as this ? I felt so helpless when he was trapped in their “care” the last 2 years they only seem to care about making him compliant with taking the meds that are obviously not working and as long as he is able to talk and walk everything is A OK next patient …
I am not an expert on medication but we do manage his meds now and i truely feel like he is over medicated that would be great if a caring doctor could pay attention and care about him and see him as more than just a number but being on medicaid im not sure we can change doctors .
I have been thinking lately about starting to reduce his meds myself just a tiny bit each of them except his antidepressant to see how he reacts to that has anyone here had experience doing this concerned about their child being over medicated and adjusting medication for their child themselves ?