Just wanted to update my situation with my son
After reading everyone’s heartfelt, helpful posts with their own personal stories of suggestions that worked or didn’t work I went down many rabbit holes since I last posted.
A poster mentioned being on a carb free or low carb keto diet helped her daughter. Searching the internet I came across Dr. Chris Palmer a Harvard Psychiatrist who believes being on a medical ketogenic diet can minimize and better yet have psychotic symptoms go into remission.That a medical ketogenic changes neurotransmitters, reduces inflammation and heals the gut microbiome. I’ve bought and read his book “Brain Energy” and watched every video I could find of him on YouTube.
He said people can get relief of symptoms ,dramatic improvement of symptoms and remission within weeks or months. Usually takes 2-3 months for psychotic symptoms to improve or resolve.
After watching his videos on YouTube we put our son ( who was a high carb vegetarian for 10 years) on this ketogenic diet. Dr. Palmer said for it to work you have to be in ketosis and the only way to know is to test. We bought urine keto strips ( which work until your body becomes fat adaptive and may need to switch to a blood keto tester)
We also bought a KETOSCAN smart breath tester to take the guess work out of the urine test strips. My son likes the KETOSCAN better at this time because it’s digital.
He’s been in ketosis for 10 days and we see such great improvements.
In that time as well I reached out to a CBT psychologist for OCD and learned he’s got severe OCD - think pure O and these distressing thoughts and images that he never told us he encounters may be the reason he’s reacting with hallucinations. They don’t align with his character of his kind, sweet self and are causing him so much distress. They suggested the gold standard of ERP therapy for his severe OCD
To ease his OCD and talking with his psychiatrist we put him on therapeutic doses of inositol. 18 grams divided into 3 doses. which I give to him in a hot tea, keto style hot chocolate, etc. Hoping eventually he can just drink in water as it’s sweet like sugar. Along with NAC 1500 mg for OCD.
He also met with a CBT for psychosis therapist and is now under her care weekly and he enjoys talking with her as the feeling of being alone and thinking he’s alone when the reality is so many people suffer from OCD he now can get everything off his mind and chest that he’s been holding in for so long and learn tools to navigate his OCD and hallucinations as the two overlap a lot.
We’re giving all of these protocols a solid 3 months to work. Not saying medicine is not an option but I want to give these protocols a fighting chance to work. There are good days and set backs but everyday there a many more good days, and I can finally see a light at the end of our tunnel.
Fish oil - high EPA, ultra pure triglycerides - EPA alone in his fish oil has1400mg 1tsp in AM and PM
Thorne B complex
Thorne vitamin C
Thorne NAC - 1500 mg ( for OCD) anxiety
Pure encapsulations Inositol - therapeutic dose of 18g divided in 3 doses ( 3 scoops in AM, 3 scoops in afternoon , and 3 scoops in PM) for OCD and anxiety
Brainvitaminz - Sarcosine - 3grams divided in 3 doses am, noon, pm
Pure encapsulations L-Theanine - 200mg PM
Dr. Chris Palmer medical ketogenic diet 50g carbs and under- ideal is 25g and under but staying in ketosis for it to work and we test daily. He also stresses that for people with serve symptoms to be in partnership with their doctor and a keto dietician or a doctor who incorporates this ketogenic diet under their care. It’s important to to be under guided care incase symptoms flare up before they get better.
CBT for Psychosis which will address his severe OCD
And as I’m praying this heals and fades away we can then incorporate ERP for OCD
He is under the care of a psychiatrist and therapist. He is medication free and I know that doesn’t always sit well with a lot of people in our life, but we are giving everything above a fair shot to work. We are giving it a solid 3 months and if everything above doesn’t work will explore medication ( we had his genetic testing done to see which medication would be better suited for his gene type)
Just wanted to update since I fell off and hope to post back
I wanted to share the Books about mitochondria dysfunction and brain metabolism that I am exploring because when my son age 12 and his first mild psychosis episode we put him on the supplements above ( minus inositol and l-theanine and made him gluten free for a year) at the 3 month mark he was almost symptom free.
I didn’t realize the connection, didn’t realize he had OCD pure O kind but he got better by 3 months and thrived.
Sadly after a year I stopped those supplements and let the carbs come back with his vegetarian diet and love of high carbs and are dealing with this all over again.
Finding these books and understanding so much more about our son we are better equipped to make real changes that may be lifelong. I really resonated with Dr. Palmer because his mother suffered from mental illness and he dedicated his life to finding a way to help people and wishes with what he knows now could have helped her.
Brain Energy - a revolutionary breakthrough in understanding Mental Health
Change your diet - change your mind by Dr. Georgia Ede
https://www.metabolicmind.org I follow them as well
Taken from their website
Metabolic Mind was launched by David Baszucki, founder and CEO of Roblox, and his wife, author Jan Ellison Baszucki. Inspired by their firsthand experience of the power of ketogenic diet and other metabolic therapies to send serious mental illnesses, including bipolar disorder, into remission, David and Jan created Metabolic Mind to be a trusted resource for families like theirs seeking better treatments.
In the video below, you can watch Jan, David and Matt share their story of sending bipolar disorder into remission using a ketogenic metabolic therapy–a treatment with over 100 years of evidence of efficacy in epilepsy. In addition, experts in the emerging fields of metabolic psychiatry and metabolic neuroscience discuss new approaches to understanding and treating mental disorders.
I’m sharing my path incase it can help someone else up at 1am googling ways to help their child or loved one.