My brother was diagnosed with SzA around the beginning of 2015.
He is currently doing relatively well, regular pdoc visits, taking medication and dealing with changes to it, going to outpatient group at his own request. There is much to be grateful for, and much to be proud of him for.
He still has SzA, and certainly struggles with some very convincing delusions. Some are persistent, like believing that hallucinations are a form of communication, or that he can visit other dimensions. The degree to which he believes these things varies day to day, but they seem to be there all the time.
Other delusions come and go, and once they have passed, seem be just as confusing for him looking back. He can’t understand why he would believe a past delusion, but he remembers believing it very emphatically.
I find myself realizing that I don’t want to search for signs of hope. That his emotional and mental stability can change pretty quickly, and that’s not my fault or even his own fault. Equally, I don’t want to push my agenda on him. I might mean well, but the implied pressure (especially from family) can be misinterpreted as disapproval or even ill intentions.
This leaves me being a strange combination of secondary, yet primary resource to him.
Secondary in that I no longer fund his daily needs. We still hang out and I’ll buy dinner or whatever.
Primary in that he chooses to talk to me about his symptoms and his experiences regularly. It seems like I’m most valuable to him as a “reality check” when his delusions are not 100% convincing, but he believes them anyway. We talk about the things that he takes very seriously, things that he is certain would cause anyone else to “freak out”.
Thanks for reading!
Wish you all the best!