I am new to this group. My wife has schizophrenia, having been diagnosed for about 20 years. We have been married for about 25 years. It has been a very up and down experience. Now we are doing well, but last year she had a really bad episode. And in previous years, we have experienced suicide attempts, one time ending up in a coma for a few days.
My main frustration is that with regard to the caregiver getting information when the spouse is having a bad episode, that the system is very broken. Last year I felt I had to obtain guardianship of my wife. It was both difficult and expensive. I do think the medical profession should be allowed a certain latitude to speak with caregivers if the patient is obviously delusional, and unless the medical professionals feel that the caregiver is abusive. It was very frustrating to call in-patient care and be told that they could neither confirm nor deny whether my wife was admitted.
I am very grateful for modern medicines. I know they have a lot of horrible side effects, but otherwise my wife would have to be permanently institutionalized.
I would say that the one thing that has kept me going is my Christian faith, and lots of prayer.