Family and Caregiver Schizophrenia Discussion Forum

Stories of success to feed my soul

My son, 24, is homeless, refuses treatment. I would love to hear stories of success to feed my soul

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See if you can listen without correcting his hallucinations and gain enough of his trust to get him on meds. My son when he takes his meds does well- when he feels fine he complains about the side effects of them and quits- and the key is getting him back on b4 he is completely dilutional. Prob is Wen he drinks to kill the voices - he is a mean drunk. Sad.

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At 22 my son had periods of homelessness and refused treatment. Smoked marijuana, which was always followed by a psychotic episode and usually hospitalization. After the last episode, in early 2018, he came home under the condition that he take his medication and not do drugs. He knows I will evict him if he does not comply; I have in the past (therapy helped with this). Since he’s been home it’s been a long road recovering from the episode, but he’s steadily improved. He’s 26 now, participates in household activities, laughs at funny videos, discusses the election, cooks dinner once in a while. Welcome home, bud.

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Yes, there can be successes, you have to keep hoping and keep trying to find the things that will provide good change. My daughter is almost 2 years out of psychosis (since Dec 2018), working a job 30 hours a week, taking care of herself to some extent, and a pleasure to live with. I still support her, and without those years of support she would have been lost. The police, a judge and a good doctor at her 5th forced hospitalization changed everything after her 2nd arrest. She is on a monthly shot that works. Starting in 2016 it was totally different, a very dark, deep place in her life that she mostly does not remember at all.

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I am so glad to hear about your daughters success! My son is on his 2nd arrest, and this time it is a big one. I question if I did the right thing by having him arrested, but all the advice pointed in that direction. He did awesome after being at the state hospital for 9 months and then put under commitment. When they let him off commitment a year later he went off his meds right away. He has been off now for a year, and has slowly declined. His latest and long delusion is the cars are bombs and they are harmful to the body. He got so distraught with us driving that he filled all of our vehicles up with water. My husbands is a diesel truck. He drove it for several weeks and it was giving him problems until we got stranded in the mountains when it just stopped. It is then that we caught our son putting water in one of our other cars. I asked him if he put it in his dads truck and he said yes and that he has been warning us not to drive. Well to make a sad, long story short, the cost to repair the engine in the truck came to $10,000! So we called our insurance and they said we had to fill out a police report, and that let to him being arrested. He is charged with a 2 degree Felony. Our intent was to get him help, and I was quite shocked that he acted on a delusion. I am so distraught and now at the mercy of the courts to get him help. How did you force your daughter to be hospitalized? Mine son refuses to get help. I hope and pray we did the right thing. Any advice?

There are no easy choices in sz. You have to protect youself. You did the right thing. Have you inquired about mental health court in your state? It can be a long program but he is not in jail and the court forces him to comply with treatment It is voluntary, though and it may depend on the type of crime. But it may work for you and your son.

I feel for you.
Please can I direct you to my post about my own success and the realism that not everyone makes it.
I will quickly Cut and paste it and edit

It’s taken my right to a full time job in a high powered role and evenings and weekends socially being fantastic and hobbies and etc but honestly I feel like there aren’t enough hours in the day as it is, when my only responsibilities are towards myself, my husband and mum and sister, who live 35miles away…
I cook healthy home cooked food, from scratch almost every day, (I’m trying to be vegan, and my husband is omni.) I clean almost sufficiently and do all the laundry
I go cycling when the weather is not too raining or windy on my electric bike. I have hobbies like art at the moment, this is an ever shifting thing my hobbies (and I have long breaks from having any)
I watch a lot of tv, I’m addictive and shop on line far too much…But frankly that’s about it.

Overall, I’m not busy like I was when doing 6 months of full time work in my late 20’s, sailing at weekends, cooking for my not live in partner, seeing mum etc

I’m painting quite a rosy picture, but I’m 46 and was diagnosed age 18 the right meds have stabilised me, And I found the man of my dreams.
Someone kind enough and gentle enough for Sensitive me.

For me, my own illness - It doesn’t feel like a loss.
Even When things are acute and terrible, the suffering somehow doesn’t feel like suffering because it’s so unreal.
Don’t quote me I think I would have post traumatic stress disorder if it had all been real
It never occurred to me that people around me were grieving
I guess it is just taking everything life throws at you and going with it.

But with support I’ve lived an exciting and varied and fulfilling life.
I am very lucky
Anti depressants are so important
Antidepressants have been so helpful and completely life changing for activities and emotional stability, they also help a lot with anxiety. And all doctors now recognise that depression is a huge part of life for most schizophrenic people
I’m happy as a constant rather than enjoying maybe one day out of ten.

Capacity changes so much year to year, month to month
With treatment, compliance, care and support bigger than anything I could ever give anyone recovery is possible
This makes me feel I have stolen my mums life actually… with all 3 of us schizophrenic she has a really difficult deal.

When my capacity was low, I did also hate it… but I did what I could
Adolescence and early 20’s can be pretty awful for everybody

I’ve heard it said that everyone is always doing their absolute best at any given time

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Sorry to copy paste I don’t know how to keep my story interesting but I think people have read it all before on here.
Isn’t boring I guess, oh dear

Thanks. It is good to hear a first person account.

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Thank you for sharing

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I hope it wasn’t wrong just copy paste.
Right now after 14 years out of hospital with no voices and no delusions- only the odd flash in public like normal people might get that I am as well as I will probably ever get and today my CPN said that I could leave the services and have just befriending relationship, awareness that if things get worse I will go back to the services.

For nine months and for three months I was hospitalised as well as several 10 day spells in the course of three years - 2 spent in psychosis.
For the moment this is behind me I have the right to life long psychiatric care, In the UK this happens once you have been sectioned for six months.

It feels like a big move, it might be nice to be befriended by someone

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I am sorry this illness has made your life so distressing, although I fully understand. Everyone’s life is turned upside-down when hallucinations and delusion are acted on.

I went to court when the judge was scheduled to see my daughter from jail. I asked the Sheriff to speak to the judge, which is normally not allowed at an arraignment. I had under a minute to get across to the judge that my daughter was mentally ill and needed to be forced onto medication and kept on it. He court ordered her hospitalization and a requirement to stay medicated or go back to jail.

An earlier forced hospitalization occurred when I called the police on her during a delusion that “everyone in this house should die”. But she wouldn’t stay on her meds.

I believe you did the right thing to fill out the police report on the vandalism your son did. Mental illness doesn’t excuse committing crimes in my opinion, and the law supports that usually. Just as a drunk or a person who is high and commits a crime goes to court/jail, a crime during psychosis is prosecuted. Hopefully the legal system will help him get medicated. You should try to advocate for him if you can. I wish you the best.

Don’t count on the courts to get him help, at least that is my experience with Washington …the mentally ill have rights is what the courts hide behind instead of getting help for those who so desperately need it.

Just keep trying, change the approach if you have to, and take care of yourself

Agree. Beyond the rights narrative there is a deeply troubled heath care system that just does not want to spend money on the mentally ill. So as I see it, the “they have rights” is the perfect excuse.

Hi, my heart goes out to you because I’ve been where you are and it was a very traumatic time for my son and our family going through this. But there is HOPE! My son was 26 years old, off his AP meds and went homeless for close to 9 months. He self-medicated with meth and heroin during that time and became highly addicted. It was very difficult to get him clean and into psychitric treatment but it worked! During that time, it took a lot of effort, determination and consistently having him amended into the Psych ER for being a danger to himself… which he was! I looked for my son daily and always let him know I loved him unconditionally. We can’t make them get help but we can be a positive influence. My son was so psychotic and addicted and I visited him in so many hospitals where I was the last person he wasnted to see as I also was the person for the most part who had him admitted. I’m so glad I never gave up. My son was finally admitted to a hospital for 6 weeks and it broke the chain of homelessness. He has been living in a 24-hour nice Group Home for the last year and a half. We also found a very effective AP med, Clozapine. That has been an incredible med and he takes it without any problem - sometimes asking for it at night. Best wishes to you!