My son is 33 and has a brain injury from a car wreck at 18. Over the past 8 years he became more and more delusional with hallucinations. He is on SSDI because of his brain injury which occurred just before his 18th birthday and he has worked part-time off and on over the years while receiving SSDI. He is also on my Blue Cross as a disabled adult diagnosed before the age of 18.
He had a psychotic break a few weeks ago and cut himself over his delusions about a famous singer and was diagnosed as schizophrenic while hospitalized for 2 weeks and for the first time put on meds which he has finally agreed to take after years of my asking. Before he was released, I arranged for him to go on to a long term facility an hour away. Because he lacks insight, he doesn’t understand why he can’t come home and go back to work. His SSDI covers a little over half of the cost of the residential assisted living center he is in.
I feel sad and depressed and weepy since learning of his diagnosis and worried because I don’t think I can continue to offer him the amount of care he needs since I work long hours. I called NAMI 6 days ago in my county and left voice mails and e-mails with 2 different offices but I think since it is spring break and staffed by volunteers, they aren’t returning my calls. I went to an agency in my town that provides outpatient services called Life Path and they wouldn’t give me any information since I didn’t have my son with me. I got this website after calling the NAMI National number.
I think I need a support group for myself to know if I a doing the right things and some advice about what is available- especially in Texas for housing assistance and options for treatment - I am in the Dallas, TX area - for caregivers of schizophrenic adult children. Any advice would be so gratefully appreciated. Thank you all just for reading this…