Venting Found out today that the heart murmur is now barely distinguishable. That’s a shocking change from 1/1 when it was an “obvious” murmur. By the time we get to Cardiologist Libby will have been 7 days without the Lexapro. At that point we can try controlled monitoring to verify but it may be validating my instincts that the meds created a heart murmur. We haven’t ruled out pre-existing issues made worse but the fact it’s improving says a lot to me. Thank God I acted.
We are still concerned and considering seizures as a cause for her lost consciousness. Monitoring with an EEG right now until tomorrow morning. This whole thing has been such a disaster I don’t know what to think. My child was fine physically and now three weeks after discharge she has a UTI, gastroenteritis, and a heart murmur? Plus five times she lost consciousness since 12/26, 10 days. I don’t consider that likely to be a coincidence. And these doctors completely rely on studies of possible side effects without looking at the possibility that in this child it could be a side effect. To hell with averages and that it’s never been a documented side effect. I know my daughter better than anyone. I am appalled at how many different ways it’s been suggested she’s faking it. She’s mentally ill, yes. But she has no history of that. No wonder pharmaceutical causes so many deaths every year when doctors don’t listen, pay attention, investigate, and do proper scientific testing! I am guiding her care because no one else will. It’s infuriating. Why am I left trying to figure this out? I am the least qualified person to do so!
They wanted to blame a stomach bug and send her home. I am sorry, stomach bugs don’t do this.
Ugh, I am so fed up with it all. We both just want to go home but I can’t let that happen until I am reasonably sure she will be safe.