Currently my 31 year old son is living in my home with his father and me.
He has gained back his insight to his condition.
He is medication compliant on clozapine although his schizophrenia is refractory and he still experiences command hallucinations that continue to torment him some days and I often manipulate his medications and try to lower his anxiety or distract him with an outing when this happens.
He has been relatively stable for a year or so which I am truly grateful and thankful.
I worry when I am unable to care for my son, my husband and younger son will not takeover.
Neither has a lot of empathy or tolerance for his condition and odd behavior.
Also he does not have much in the way of activities or social life although off and on we have tried many different ideas.
I am trying to decide what might be the best living arrangements for my son and us.
I am contemplating whether it would be better to place him in a lovely residential open campus facility that is across town which would cost similar to assisted living for seniors so would be a financial burden on our upcoming retirement. He would have his own efficiency and they provide social activities, outings, opportunity to work a few hours for minimum wage and monitor him. I worry if this would not work out, my husband would not be willing to take my son back into our home and it might be difficult to get my son back to the level of stability we have right now.
Another idea would be to build an apartment on my home or find a home with such an arrangement. Although I don’t think isolation is a good idea for my son but would probably make my husband happier. It seems if he were in a totally separate apartment, with no caregiver, it would be harder on me to have to go there to check on him and again he would be isolated and most likely his condition would degrade.
We could stay as is, but at some point I may not be able to care for him and it could be harder on him to be placed at the residential facility after experiencing the trauma of losing his caregiver. Also my husband would really like to retire with just the two of us, maybe even travel and have freedom. Currently I can’t leave my son for more than overnight which again I am blessed we do get that time alone usually once a week.
Any thoughts, experience or ideas are greatly appreciated.