Family and Caregiver Schizophrenia Discussion Forum

How much is enough


#1

I have a friend who’s full time caregiver I’ve been for 2 weeks now. I was able to take that time off work, but that is all. There is no one else to take care if this person, and I am willing to give up my job to help him. However I would like to know how long he will be needing this kind of assistance. I’m currently with him 24 h a day ( he’s been evicted from his flat). I know this may vary depending on the person, but I would like an idea of a general time line. Also, how long do you think he will need this sort of24h care. I am of course in regular contact with his therapist, and the first 2 weeks she insisted on us being together constantly. I was just wondering if anyone out there has experiences with this.


#2

Hi Leelu, Depending on what’s going on, it could take a long time. Everyone is different with individual needs.

I think it’s a good idea to ask the doctors and other service providers what to expect. Tell them what you really can and can’t do.


#3

Tons of answers to questions like that (and many others) here:

  1. Get a copy of these books, read them and have your family read them, as well. (Torrey can be a bit totalistic and unwilling to see exceptions to his “rules” at times, but most of his book is really worth the effort to plough through.)
    http://www.amazon.com/Surviving-Schizophrenia-6th-Edition-Family/dp/0062268856
    http://www.amazon.com/The-Complete-Family-Guide-Schizophrenia/dp/1593851804/ref=as_sl_pc_tf_til?tag=schizophren0c-20&linkCode=w00&linkId=XKLY6NWSWJSQ3VYN&creativeASIN=1593851804
  2. Get properly diagnosed by a board-certified psychopharmacologist who specializes in the psychotic disorders. One can find them at…
    http://doctor.webmd.com/find-a-doctor/specialty/psychiatry and https://psychiatrists.psychologytoday.com/rms/
    .
  3. Work with that “psychiatrist” (or “p-doc”) to develop a medication formula that stabilizes their symptoms sufficiently so that they can tackle the psychotherapy that will disentangle their thinking.
    .
  4. Psychotherapies for that currently include…
    DBT – http://behavioraltech.org/resources/whatisdbt.cfm
    MBSR – http://www.mindfullivingprograms.com/whatMBSR.php
    MBCT - http://www.ncbi.nlm.nih.gov/pubmed/22340145
    ACT – https://contextualscience.org/act
    .
  5. the even newer somatic psychotherapies like…
    MBBT – https://www.newharbinger.com/blog/introduction-mind-body-bridging-i-system
    SEPT – https://en.wikipedia.org/wiki/Somatic_Experiencing
    SMPT – https://en.wikipedia.org/wiki/Sensorimotor_psychotherapy
    .
  6. or standard CBTs, like…
    REBT – https://en.wikipedia.org/wiki/Rational_emotive_behavior_therapy
    Schematherapy – https://en.wikipedia.org/wiki/Schema_Therapy
    Learned Optimism – https://en.wikipedia.org/wiki/Learned_optimism
    Standard CBT – https://www.nami.org/Learn-More/Treatment/Psychotherapy & scroll down
    .
  7. Get two or more of those “down,” and one can use the skills therefrom in this way to combat delusional thinking and emotional reactivity very quickly:
    10 StEP – http://pairadocks.blogspot.com/2015/04/the-10-steps-of-emotion-processing.html
    .
  8. If you/she/he needs a professional intervention to get through treatment resistance, I would use those search tools in item 2 above. Look for clinics that include intervention and treatment resistance services.
    .
  9. If you or your sz patient suddenly becomes manic: http://www.currentpsychiatry.com/specialty-focus/bipolar-disorders/article/what-to-do-when-your-depressed-patient-develops-mania/f3218a38f6603114ff2f9d9bfc21acfb.html?
    .
  10. Look into the RAISE Project at https://www.google.com/webhp?sourceid=chrome-instant&ion=1&espv=2&ie=UTF-8#q=raise%20program%20schizophrenia.
    .
  11. Look for mental illness clubhouses in your area (which can be hugely helpful… but may also pose risks). Dig through the many articles at https://www.google.com/webhp?sourceid=chrome-instant&ion=1&espv=2&ie=UTF-8#q=mental%20illness%20clubhouse%20model to locate and investigate them.