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How to deal with my sadness of my sons schizophrenia

#341

This struck a chord with me Juliej, so how I feel, and so how I do.

Everybody here will know it’s hard at times, mentally, physically, and emotionally draining, but being grateful for the positives in our lives is a terrific coping mechanism.

Take it a step further, and this is going to sound really bizarre, but I sometimes believe I’m actually lucky to have this burden of caring for a daughter with sz. It’s taught me things about myself and about the world that many people will never discover, it has strengthened me, strengthened my marriage, and has given me a sense of caring and understanding that I probably wouldn’t have found otherwise.

#342

Me too. I’m still devastated and the sadness is unbearable … and debilitating.

#343

I too have wonderful, caring and understanding family. I don’t call them for help either even though they tell me to. But when I really need them most, is when I’m most unlikely to reach out. I get so down that I don’t want anyone else to be down because of me.

#344

This past summer my son has a relapse and I had to get him in the hospital. His first episode when he was diagnosed, his dad got him in. I hoped it would never have to be done again but knew it would, and I’m still not over it. He’s on more medication now and has started gaining weight :(:tired_face:

#345

Choose joy is a great book my Kay Warren. She says the bible said there are hidden treasures be found in our sorrow. We become skilled at nurturing joy within ourselves and others.

#346

I feel the same it is so sad a life for them and us … we mustn’t let it though … we have to have some kind of a life even if it’s always tinged with sadness … just do the best u can and then hand it over … we didn’t cause this condition and we can’t cure it . I pray for a miracle …

#347

Yea I do . Feel guilty when I get cross because I’m so tired of trying to sort my sons problems out … especially when he’s paranoid … he can’t reason … he’s on loads of meds and has been since he was 21 he’s 42 now … so it’s been a long hard road but it’s a bit better and I’m better at dealing with the stress… I don’t feel too guilty if I go on holiday as I need it to carry on . So yes be good to yourself or it won’t work for anyone …

#348

Same here …and the song by matchbox 20 “unwell” I think its called, makes me cry …I avoid it at all costs

#349

I feel guilty all the time…I cant help it …

#350

I cried a lot when my grandson was diagnosed. I thought his life was over and he kept taking us down a bad road. But he finally got off drugs and on the right medication which was clozapine. It’s been 2 and a half years now and he has made an amazing recovery. He’s back to work, driving again, he has even made some new friends. During the worse part of his illness I just keep reading positive recovery stories and making gentle suggestions I am very thankful . Once he started on Clozapine, in the hospital because they could bring him up to a therapeutic dose quicker, within 5 days he was doing better. It waa a miracle drug for us. I had to fight to get him on it and it took two years but what a difference

#351

Dear AAmark, This is my first time writing on this message board, never knew this existed. My son has schizophrenia and is in denial. It hurts so much to see him like this. I cry a lot when I’m driving alone to and from work. I hold it together as best as I can at work, but I’m a mess. I feel your pain and totally understand.

#352

I live in Los Angeles and not much help here either. My son was diagnosed in 1998. He has been taking Zyprexa all these years with success. He has had some minor setbacks. Might be worth a try. Good luck.