An anti-psychotic medication should significantly minimize symptoms of schizophrenia if it is administered in the right dose for the person and taken as prescribed. If adjustments have been made and it is still not working, Clozapine works amazingly well for a large number of persons. There are references to it elsewhere on this Forum that I will recommend. Clozapine is actually recommended by the FDA as the A/P of choice if there have been two or more failed anti-psychotics and some believe it is the “gold standard” and should be first choice. If a person with SZ is not taking effective medication, there is little chance (as you can discern from this Forum and other places, too) that they will ever live a meaningful life for any length of time. I’m not saying it can’t happen, it is just not statistically the case. ECT also can be very helpful for some persons when an A/P is not, especially if there is a mood component (depression or suicidal ideations), or additional help is needed. NAMI is a good resource for many families as a place to share your story and listen and learn together. NAMI support group for the FAMILY is separate from support groups it offers for those living with SMI. I often get helpful ideas and resources in such a support group that help me in this journey with my LO. And I agree wholeheartedly with using the communication tools presented in the book “I Am Not Sick; I Don’t Need Help.” I know this is a difficult journey but I absolutely believe that our continuing to learn, our determination and hard work can truly make it possible for our LO to have a meaningful life. We also need to advocate with our state legislatures for better systems, processes, and resources to help our LOs. NAMI and other mental health organizations are often involved at the state level and also at the federal level. NAMI was instrumental even just this past week in getting the SAMHSA grants that were cut off, reinstated. Change doesn’t come overnight but WE are the best advocates for change when we unite and make our voices heard.
Yes, well it’s a terrible thing to experience. It bothered me when I saw him torment my mother (he tried to kill her) and my father. And when they were gone, I got the full brunt.
You’re bringing back memories. I could tell some stories, but I’ll pass.
Best of luck to all.
Well, it DOES take a lot of work to utilize the LEAP method of communication, as you refer to. That IS a proven method to get persons with schizophrenia/psychosis to engage in treatment. I’m not sure why you wouldn’t try it. It doesn’t cost anything except being intentional with the conversation. Individuals with supportive families are more likely to have better outcomes, but it takes a lot of work…and time, as you mention. And there are no guarantees. This is where NAMI can be a resource as a support. But so many families give up because it IS hard. Or they want quick results. I don’t mean to be blunt, but this is what I have observed. Other families have success stories for their LO to have some degree of meaningful recovery. Each family has to make a choice and also take care of themselves. For many people, it is possible to do both.