Ladies and Gentleman,
Over on this thread: https://family.schizophrenia.com/t/how-can-he-appear-fine-to-others/13516, the idea of creating a podcast for carers of people with schizophrenia and similar conditions came up.
I am a ready to go ahead and set something up. I have some ideas of people I would like to get on. I potentially have some quite strong connections. I would really like to make an initial focus on partners of people with schizophrenia and similar conditions, particularly those who have been abandoned whilst they believe their partner is unwell.
I do not think there is really much out there for people like us. I am not aware of a dedicated podcast. I do not think we have a voice. My degree is in history. I am always the most interested in the people that fall through the cracks and are not documented. So often because of the nature of the illness and it being part of our loved one’s life they want to keep secret, we end up keeping it secret, taking on so much burden without an outlet, sometimes feeling guilty for talking about it with others. We need to be represented. We need to be respected for what we are doing. I think that people that choose to care for people with these conditions are generally speaking going to be pretty good people. Nobody is going to choose to do this for fun.
This podcast is something I really want to do. I am open to suggestions. Let’s make it happen. We are going to empower ourselves and make it big.
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This will give us a beautiful voice, more connections and support for our peers in this situation!
I recorded this call to arms video. Please let me know if you would like to be involved bu messaging me on here or by emailing the address mentioned at the end of the video (please ignore the annoying wisp of hair on my forehead):
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Beautifully said! I can not wait for this!
Hi. LowProfiler
I love the idea of the podcast!
We as carers really need a voice and be heard as a group!
I’m very interested and would appreciate hearing about others experiences and how they managed I feel like I hit brick wall after brick wall with several family members blaming me for enabling the voices and behavior ( although I understand the voices my loved one experiences will be there regardless) It’s overwhelming , frustrating, financially devastating and the light at the end of the tunnel dims while I’m
chasing my tail with minimal positive outcomes
The way I am looking at it is that we might not be able to do much at first, but what we can do is trying a quantify what is happening and what we are all doing. I have my degree is in history and my area of interest is often the people that don’t get recorded. It is funny that even as I have been speaking out here and with a few people in my community I am starting to see similar patterns. Now I do not have the immediate caring responsibility I would like to try and do something to make a noise to make things better.
I am trying to get someone on that has schizophrenia, but has not had major symptoms for several decades. I have ideas for a couple of other people. If there anybody that would like to come and join me for a podcast, talking about what they do or their situation or whatever please message me and we will work it out. We might not fix much, but once we start talking about it, it becomes public record and our narrative starts to exist.
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I decided to record the first episode of the podcast solo rather than waiting to get someone to come on with me, but I can use it as another call to arms and start getting people involved. I am preparing it now. It will be on Youtube and Spotify initially.
Ok, the first episode of the Fog of Care Podcast should now be live on Youtube and Spotify at the following links. Let me know what you think!:
Hey there! Thank you SO SO much for taking the time to do this video. I would love to chat. Feel free to shoot me an email.
rjstewart1480@gmail.com