I’m sorry your poor uncle had to suffer alone and end up unsupported. I would be very afraid for any of my family to end up like that. I do want my both of my brothers to feel loved and supported. But it’s not always that easy.
In the case of your Uncle, as he was growing up, there was a lot of stigma attached to everything. There were institutions for everything. There were doctors who were convinced that only a well-equipped institution could truly help those who suffer from any disorder. Parents were talked into signing loved ones over.
The idea of at home care is in its infancy. There are more things on the market that help with day-to-day difficulties.
My brother is a chronic sleepwalker. It wasn’t until just a few years ago that there were affordable and easy to install door alarms for this issue. He also used to leave burners on and things would catch fire. That would kill his confidence for cooking. NOW there are burner sensors that just plug in. So what used to be a dangerous issue is now no issue at all.
It’s not that I don’t want to accept my brother’s illness, because I do feel that I have indeed accepted it. But that doesn’t mean with out help and support for myself I’d be anywhere near as helpful to him.
I do work with Downs Syndrome kids during the Special Olympics and yes some of the kids do get put into homes and are cared for by others. There are also homes for Autistic children as well.
When a family is unable to care of someone they need extra help. I’m not referring to the unwilling, but the unable.
There really are some families who are completely unable to care for their ill loved one. No matter how much they may want to.
Please be patient with us caregivers.
I have a heart full of best intentions.
I’d like to think that I’m giving my all to aid my brother when he’s in need. But as a person with 20 miles of good intentions and only 20 inches of any real training, I do end up in over my head. I’m sure I’m not the only one in over their head.
Thank you for letting me post.