Finally, after several years, we just received notice that son has been approved for his SSI.
We first applied in December 2011 and were denied. We applied again about a year later in December of 2012 and were again denied.
The third time around in June of 2013, we hired a lawyer. Third time is the charm.
Even though we missed the deadline to appeal after the first denial, our lawyer is able to have retroactive payment date back to 2011. The lawyer will receive 1/4 of the retroactive payment.
The Judge would not allow son to be in charge of this money, so son has agreed to me being the payee. I am thankful for that decision:) We are all relieved, as this will be a huge financial help. The lawyer said the next step will be that we will receive a notice from SSA to meet with them and set up payment details.
Just thought I would share our experience, as I have seen much discussion about this subject on this forum.