Hi, welcome back. I am sorry your son’s illness is not under control yet. Thinking about your situation, the only way I can answer or relate is to equate what your son is going through with times I tried to get my son to do the right thing for his health and welfare. Honestly I stayed on him relentlessly, but not in an aggressive or angry way, just constant gentle and quiet prodding with spaces in between each time I did it.
I would use key sentences that highlighted my concerns. Like with my son one instance was he used to sleep in the closet fully clothed with hat boots and winter coat in the middle of summer. He had a bed outside of the closet, he had plenty of cool clothing and things to change but for some reason he did what he did. I just kept saying it’s too hot for all of that, don’t you feel hot?, it’s summer, at least take off your coat, at least come out of the closet, on and on and on, I never raised my voice or threatened anything, I just did it every day, for the longest he never responded back, weeks went by and then one day he was sleeping on his bed, still fully dressed with boots and coat but on his bed. I commented how happy I was he chose to do that and asked if he noticed how much more comfortable the bed was than the closet floor. He mumbled something, he never said much at all. Then about a week later he was in bed with no coat just clothes and boots, I walked in and started to remove his boots, thinking he was asleep, he recoiled and wouldn’t let me but the next night he took his boots off himself. It was a grueling long process that I think took so long because our ill children take literally forever to process a thought we give them that is different than what their brain is telling them.
I think in a way I forced my voice into his relentless thoughts giving him different thoughts to consider over time. I don’t know if I’m right or if this would work with anyone else other than my son. It’s all I have to offer. I had the benefit of my son living with me so I could be heard anytime. Today my son still sleeps in street clothes in his bed but no coats, no shoes and I can live with that.
One last thought is -would there be a chance that your son would accept using an electric blanket? also I found that if you put the thick plastic protective covers over mattresses they are SO much warmer just doing that. Not sure if any of this can help just tossing out my 2 cents. I always wish you and your son the very best going forward. Merry Christmas.