Keep knocking on those doors, eventually one will open. Do you think you may go with the Doctor that didn’t have good reviews? It seems like it may be best to keep your daughter with the therapist she has as she likes her. Or maybe she could see both?
On a side note - I just watched On the basis of sex, about Ruth Bader Ginsberg. It was very inspiring and I try to have her tenacity with many things that I have to work for. Hang in there.
I wonder if NAMI would have information about recommended doctors in your area?
Actually the one that did not have good reviews is the one that is saying she would have to go to their therapists and it is the one that could have an opening.
I’m pretty stressed
I lost a brother to schizophrenia and I’m also schizophrenic
My youngest brother has had similar problems but has been abused horrifically and has major alcohol misuse problems with some spirituality similar symptoms to me which I always move away from when I’m medicated and well
She is going to crown court because someone abusive has made it his life to taunt her on line and waits for her to contact him and has had a restraining order against her which she has severely breached
My stress is quite high and i can’t let that go on
My Dad lives with my brother and has an aura like a high pitched constant scream of stress
He was hit by a car in front of me in may and has osteoporosis
Hes walking with a big limp and is in a lot of pain
I dont know if she is 100% out of the immediate danger of the year after the event
Sorry i could go on for ages
That’s how I read it. I am wondering if she could see both their therapist and her current one or do they say that you can only see their therapist?
Feeling like an ignorant doofus today.
I spoke with a lawyer about helping me with the appeal to get my son onto SSDI from his dad’s work history now that he is retired. The lawyer was not encouraging and would not take the case.
When I applied for SSI, it seems at that time they determine the ONSET of disability. I was ignorant at that time, and thought I only was proving that he had a disability. I used the paperwork I had available at that time, which was from the year my son turned 22 and after - he had been living with his dad before that time, in another state.
But the lawyer said in the eyes of Social Security, that date of onset was determined at that time, and usually is not easy to get changed.
He asked if I had used a lawyer. I had not, and the SSI was granted without a problem, and I had no idea that I had just painted my son into a corner.
I know age 22 is the cutoff. I hope this gets sorted out for you and your son. Things are so tricky to navigate.
I guess the key for anyone with an ill loved one is to try to get benefits in place before age 22.
Yes, a hard lesson learned. I had no idea when applying for SSI how important the date of onset would be down the road. I was still so new to this, I was just pleased that he was granted SSI without any difficulty.
Learn from my mistake! When dealing with Social Security, when you apply for SSI, the date of onset is not critical, but it is if you think you will apply for SSDI for your child when you retire. When applying, go for the earliest date possible, if you have proof of disability prior to age 22.
On the initial approval for SSI, the Established Onset Date is given, and will be referred to in any later dealings with Social security. If it is not set as early as you think it should be, you have 6 months to appeal that decision.
I swear, I wonder how many honorary degrees I should deserve by the time I die - one in social work, one in law…
This is something I need to start thinking of… applying for ssi for my daughter. I am hoping the hospital will give us some insight on how to get started… at least I would hope they hope… if not we will have to ask.
Managing this illness is a work in progress. My daughter was diagnosed at 18. This Valentines Day will be 15 years since the day of diagnosis. I feel so sad for her having ro live with schizophrenia for so many years. Thankfully she gets my husband’s survivor benefits and medical and Medicare which is such a big help for us. Around the date of diagnosis, not an anniversary since there’s nothing good about that date, I become so sad for her thinking of all she’s missed out on, fractured relationships with family and friends. I’m happy she is here with me and not alone.
This is a tough month for you @Cerium. Fifteen years is a long grieving period. I’m sorry for this. Hugs.
Our “anniversary” is coming in March. It’ll be 3 years since the first break and hospitalization. That’s my time marker. He was 19.
@daybyDay. Thank you for the acknowledgment. You are kind. Time is a marker, but as so many of us know, there are so many ups and downs with this illness, some experiences are new as well. With time, as a parent, as you may know coming up on 3 years, we do learn to manage with acceptance, as do our children.
Windy, from what we experienced, you need “history” to get your daughter approved for benefits. With hospitalizations, data to support her inability to be gainfully employed, and a formal diagnosis, you’ll have what you need to get approval.
A hospital social worker can be a good resource or you can download the applications off the internet.
Windy, the hospital has social workers who can assist you in applying for SSI. It is important to have as many medical and hospital records as possible to support her diagnosis. The Internet has lots of information too.
I suggest you get other opinions. One lawyer’s opinion is not necessarily another lawyer’s opinion. (I am a paralegal in the car accident field). Some firms take cases that other firms have turned down.
Sigh, my daughter’s onset was March 2016, so it will be 3 years soon for us too. She was 32. It is a sad anniversary that coincides with her birthday which is also in March. It almost coincides with her father’s car accident (turning him into a quadriplegic) in April 2013 and his death in August 2013. I’ve always wondered if that horrible time was the beginning of her illness and it took 3 years to develop.
My daughter says that she started hearing the voices 3 years ago… and we found out to our shock while we were in triage at the hospital that she had tried to drown herself at in-laws’ lake house but luckily her sister was there to stop her… later we asked our younger daughter about this incident and she had forgotten about it. I wonder seeing her sister almost drown herself was traumatic and she blocked that memory.
When we drove my MI daughter to hospital I emphasized to her that she has to tell the doctors and nurses everything so we found about things we had no idea of… I can’t imagine what she has gone through, suffering silently for 3’years without telling anyone. We knew that she was struggling with something, but she wouldn’t open up to us all during this time, so we no idea the extent of what she had been suffering. We thought was just regular teenage stuff. We did all we could do to encourage her.
This past summer she was working at a youth camp, working the climbing wall. It was one of her friends there that noticed something was wrong and told her that she needed to talk to us about this.
Around three years ago, my wife and I were restoring from a rough time in our marriage, so I am sure that was hard for her, but also she was dealing with someone who was supposedly a “friend” was emotionally abusive trying to get her to do things she didn’t feel comfortable with. My daughter believes this “friendship” was connected to the onset.
The anticipation of possibily getting a diagnosis for my daughter is literally making my stomach hurt…she is supposedly having her meeting right now.
I wish we could be there for that meeting, but it is before visiting hours.
As her care givers, you can make yourselves part of the team of decision makers, especially since your daughter signed the confidentiality release.
Whenever my son was hospitalized, we had “family meetings” to talk about progress, concerns, next steps, etc.
Visiting hours shouldn’t hold you back from attending these things.
I keep thinking about something my daughter said earlier this week. She was describing a character from some of the stories she writes… as a happy, loving, caring and confident person… and she adds very emotionally, “That’s me! That’s who I am meant to be!” She feels that with the medication helping her control the voices, she does feel more confident.