Maybe some of you remember me - I’m sure there are lots of new people here since I’ve been gone.
The short story is that my son’s zyprexa stopped working about two years ago, so he stopped taking it as his symptoms got worse - then decided he wasn’t sick & didn’t need to take anything at all. That led into several manic episodes, 5 hospitalizations in 10 months, a failed Invega trial and, finally, clozapine.
He’s stayed on 200 mg of Clozapine per day for a year. All blood tests have been normal and he just graduated to once/month blood tests.
He sleeps pretty well now, although he has gained quite a bit of weight. That’s stabilized - he’s only gained 1 pound in the past 3 months. He does not appear to see or hear anything that’s not really there, but some of his delusions remain. No new ones - it’s just the things that were like false memories haven’t went away.
He is just starting to function a little better, in small ways that won’t mean much to anyone who hasn’t supported someone going through this kind of thing. He’s met with his case manager in public twice, and today he let her pick him up with some other people in the county van. They went to the local zoo then went to McDonalds. That’s a huge thing.
He still has a lot of anxiety about some things - I don’t think that’s going away. But, the little steps are great.
I know there’s a lot of fear about Clozapine and it’s not for everyone, but it’s been good for him.