My favorite quote about recovery is this:
“Parents agree that recovery is when their son or daughter has some measure of stability. There is no cure for brain disease, and symptoms often recur, but accepting and learning to manage one’s illness is success. Addressing recurring symptoms and moving forward each day, even if by inches, is success. Having routine and purpose, and satisfaction in one’s life defines recovery. Getting to that goal happens day by day, and those who embrace the journey are to be admired”.
“Recovery involves a new and valued sense of integrity and purpose within and beyond one’s disability”.
For those of us who deal with anosognosia…
“There is no difference between the level of function or happiness from acknowledgment.”
My son’s doctor recently - “he has routine and purpose in his life - this is recovery” His examples were, he works to progress on computer games, he practices an instrument with a dream of playing before people at an open mike event. He has learned from CBT how to grocery shop for his sandwich makings. He is setting goals and working on them.
I called my friend the former FtF instructor and asked if she would advise us regarding parental expectations. She has so much experience and is a tremendous resource.
She said that too often we parents become involved in pushing to rush our loved ones back on the traditional track. Get them on meds, get them back out there in life. She says we just discourage them and frustrate ourselves in the process. She says we miss the actual progress for many of our “Kids” because we have set a bar too high and we are pushing for a time limit for big projects when reality is that it can take years for a small step forward. Basically she says, as parents we tend to miss the reality of progress.
Can anyone else add some examples of recovery?