GSSP, he is not trying to present it like a person with SZ can’t function. He was trying to show how hard and frustrating it is. How devastating, how distracting. How depressing and scary. Especially in the beginning, when it starts. Because they played the recording along with him, I too tried to function normally while listening and really struggled to focus. I tried to write a blog and to tune it out, something I am normally good at but because there were so many and they kept changing, I couldn’t. The whole thing was very startling to me. A person with SZ long term would have coping skills that we couldn’t develop. Maybe the video was more helpful to me because I was mentally wanting to learn where others might not be.
For me, it helped me to understand why it always seemed Libby was never listening when we talked to her. It explains why she never seemed to comprehend things in class or why when teachers would talk to her, she couldn’t understand. And I feel bad for all the times she got in trouble for it and couldn’t understand what was happening or why. It was like she was looking inward. To her we probably just sound like another one of her voices, and she couldn’t distinguish between us and the voices she was hearing. It might explain why my voice is the one she listens to and internalized the most. Now I feel like I can talk to her school just a little more educatedly than before so we can help her succeed in class and in life.
I watched the video of your wife and I am so sorry. I can understand why you would be frustrated to see SZ, such a complicated illness, presented in such a simplistic manner. But for some of us, that’s what we need - simplistic terms.
My heart breaks for you and what your family must endure every day. If I understand the symptoms correctly that looks and sounds like a ‘word salad’ and/or disorganized thoughts along with severe paranoia. It must be so frustrating for her and for you that she is trying so hard to communicate and isn’t successfully able to.
I am grateful that we have caught the signs early in my daughter and can hopefully help her. I have hope that we can help her. The meds seem to be working for the time being and I am so grateful for that. She is so relieved and her spirit is brighter than I have ever seen. I can’t even put the difference into words, especially since I’m still just finding out how bad it was for her. She and I talked tonight about what it was like for her for the first time and internally my soul hurts for her. She’s spent the last five years so very confused! It’s heart-tearingly sad, especially at such a young age. Watching her struggle to describe it and put it into words was horrendous.
I read your profile description and can’t even fathom the frustration, grief, despair, and fear you endure every single day. I don’t think there has been a day in the last two weeks when I haven’t cried. For you, it must be unbearable and I wish I had some comfort to give you. I wish I could give you a hug. I wish I could somehow make it better for both of us.
Thank you for sharing the videos, I appreciate the help in trying to better understand this unfathomably horrible mental illness. I realize I am new to the forum and no one really knows me. I realize my situation is different and horrible in its own way. I just appeared one day and started talking, sometimes very desperately. I will try to post an intro now that we aren’t in such a crisis. But really, there is only one thing to understand about me right now: I want to be there for my daughter and I will do anything and everything I can to do that. And I want to do what I can to educate others. I am a writer professionally and a Paralegal. Mental illness isn’t just part of my personal life, it’s part of my professional life as well. I have PTSD and anxiety. I have been through more tragedy than many people experience in a lifetime, from incest to rape to being almost murdered twice. Even with all of those experiences, and over a decade of counseling to help me empathize with others different from myself, I was completely ignorant and oblivious and I don’t want to be anymore. I can’t afford to be. And I appreciate your efforts to help me so very much. Thank you for taking the time and energy to help me with all that you’re struggling with in your own life.