I am so sorry that you are going through such a roller coaster of frustration right now. I can only imagine what you are going through as a mom. You must love your daughter immensely and find it incredibly heart wrenching to be torn away from your family while you are doing your best to support your daughter’s needs. As the daughter of a paranoid schizophrenic, I know that my grandmother played the role of supermom for both my dad and I. I saw her struggle so much when he had periods of psychosis. Unconditional love was the glue that kept her and our little family together (we were ostracized too). It definitly hurts knowing that people with the same last name as you, who you’ve known you’re whole life, now don’t want anything to do with you. Somtimes family members and friends just can’t grasp how hard living with schizophrenia is. Thank you for sharing your frustrations on this forum.
When my grandmother passed, my dad completely de-regulated and was never the same again. I encourage you to have concrete plans in place for if something were to happen to you. So your daughter can conitunue to receive the quality of care she needs.
Although I am not a parent, I am certainly feeling the urge to become the caregiver of my father. He is 65 yrs now and I am 21. He recently had a stroke and is now bieng fed through a tube, inncontinent, and can only speak a handful of words. Adverse events like these help me to realize how fleeting life can be. Every day is a new day with individual’s who have schizophrenia. Many people who have SZ, have so little control over their lives and minds, that med noncompliance may seem like a good option to them. It may seem like a way for her to feel like she’s in control over her situation. Offering/brainstorming other ways to feel like she’s in control may help. You’re right, medication noncompliance is extremely difficult to navigate. Listen to her, and explore why she’s feeling this way. What’s her cascade of reasoning behind her choice? Maybe she’s reasoning too abstractly and needs to reel her ideas regarding her own plan of care back in a bit. Yet, through it all, consistent, unconditional love can be the best medicine. -and i’m not just talking about love for your daughter, but love for yourself too.