Family and Caregiver Schizophrenia Discussion Forum

Can someone give me some advice? Please

There is hope. Others have voices and fear people are watching them. They use coffee ,cigarettes, alcohol to drown the voices. My son is on meds that make him feel zombie for awhile but it passes and he is able to make his own food, clean his apartment and talk to people. He takes meds again before bedtime, then needs to be alone. He can laugh again and tell stories of long ago. He eats very little dairy and gluten.

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Hello, I just want to say that I have to wait 7 more days to see the doctor, and that is fine with me. But lately I am starting to feel even worse. 6 days ago for the first time I felt something that I would call a seizure. For the first three days it just was this strange feeling, like I am starting to lose my mind, reality felt far away, like I was having a dream while I am still awake. It lasts for about half an hour, maybe an hour. But now for last three days those seizures are getting even more stronger. It feels like reality is even more further. It is hard to hear what my girlfriend is saying or see what is happening around me. I am starting to shake, like in a cold weather, and I don’t know if I am doing it myself or is just happening, but I can’t stop it for sure. I can get really angry or start to cry, but there is no reason to feel those emotions. It’s is hard to say something, because there is such a mess in my thoughts. When I start to feel better, it get’s easier to communicate and think, but I can’t remember what happened with me. In my memory there is only a few seconds or minutes of the whole seizure. Has anyone of you ever heard about something like this?

Thanks, Andy

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It happens only once a day, for six days now. And it can happen at any time of the day, but only at home.

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If it’s temporary and you’re not at risk of injury and you’re not taking anything, you may be okay to wait it out. If you’re concerned there’s a couple options you can choose:

  1. Try to get an appointment with a general practitioner who can order some tests to rule things out. AND/OR See if you can move up your existing appointment into a more urgent status based on your symptoms. Describe them as you did here.

  2. Visit an urgent care center if you feel you can’t wait for your appointment but not that your life is at risk.

  3. Go to the local ER and request an evaluation for possible seizures and mental illness. Let them know your symptoms and what you’re experiencing and request a referral for inpatient treatment at a mental health facility. They’ll evaluate you, do blood work and take your vitals, have you talk to a doctor and if you meet the criteria refer you to an inpatient facility.

One thing I would definitely do is keep a journal with you and record the date and time of these episodes, as well as what you were doing. Recording these things might help you to find patterns and help to identify specific symptoms. You might also want your girlfriend to go with you to your appointments for support and additional validation. She might be able to shed some light on things you miss. But up to you (and her) as to how far you want that to go. I don’t know enough about your relationship to know if that’s a good call, I just know having support can really help.

All of this depends on your circumstances and preferences as to which path to take. You’re the patient and you’re in control. Ultimately, you’re in charge and it’s up to you to demand a solution that works for you from the medical community. Remember, their job is to help you, that’s what they are paid to do and there’s no shame in asking for help when you need it.

Good luck Andy! I’m rooting for you!

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I would go to the ER the next time it happens. Not because it is life or death but because it will get you treatment right away. You may be admitted, but don’t be scared. Getting intensive trreatment now will greatly increase the likelihood of a complete recovery.
Plus, you don’t know that these symptoms are due to a mental illness. It could be any number of medical things. Get it checked out👍

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While you may not want to - I highly recommend you go to get an evaluation at a local psychological clinic or early psychosis treatment center. Here are some lists for them around the world - you can probably also talk to the psychology counseling center at the university where you are - many of the Universities have these.

Here are the lists:

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Any update Andy? Hope you were able to get to some help before you are no longer able to think clearly enough to do so. By the way, have you let your family know what’s going on? Or even one of your professors or academic advisors? You may need an older adult to help get this ball rolling. We old folk can be persistent when we’re fighting for help for our younger ones especially when so much is at stake. Best wishes.

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Besides following through with your upcoming appointment please consider getting a complete physical too -if you haven’t had one…there are physical ailments that can greatly affect your mental stability, one that I know of personally is diabetes, and then there is potential heavy metal toxicity, and electrolyte imbalances can result in seizures as can other unidentified issues. Make sure you are eating healthy foods and drinking lots of water, this advice may sound insignificant but it is important for everyone. Be completely forthcoming with all of the doctors you see in the near future and if you need a translator please request one. Keep us posted.

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Hi Andy. Any news? Have you been to the doctor yet? I can’t say what it is that you are experiencing regarding these ‘seizure’ feelings, but it sounds similar to an anxiety attack. Awful things, but they won’t impact your physical health (unless you faint or fall) and can be overcome. Were these discussed with the doctor?
Hope to hear how you’re doing soon.

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The best advice is what others have already said. Talk to a doctor. Be completely honest and forthcoming as you can be. It’s possible it’s not schizophrenia at all. I’m curious that you said you only have seizures when you’re at home. Perhaps it’s something in your home environment? It’s not unheard of.

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I have been to many doctors, but no one can give an answer, what is wrong with me. With every day I am starting to lose willing to live my life, I have lost my goals, everything seems to be pointless. I am using some kind of pills, but they doesn’t help me. I tried to overdose them with alcohol, even that didn’t work. I just don’t know what to do anymore, my mind is empty, there are no thoughts, I can’t make any decisions anymore.

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Hi andy.d,

So sorry you are not getting answers that can help you. Were you able to see a psychiatrist when you saw many doctors?

Can you look at the pill bottle and type the name of the medication you were given?

Every time you feel as though you would like to overdose you should go to an emergency room and tell them.

I know its hard when you can’t make decisions.

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I am not experienced in all this, but I want to say that everyone here cares about you and wants you around. On the regular forums there are many people struggling with the same feelings and they give each other a lot of friendship and support.
My son’s medicine took a while to really start working. Is there a friend or family member you can talk to?
Thinking of you and sending you support.

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Hi Andy, please don’t give up. Muster all the courage you can and keep trying to find a doctor that understands. Medications do take time but once they get that right, things can improve. When my husband started his meds for depression, it was three months before I saw a significant change. There was one medication that didn’t work and monthly visits are normal until they find the one that does. Then visits can go longer until you need a change again. My husband is now planning things for us to do on my day off. I’m smiling for us and hoping the same for you.

Please be patient but also find someone who will help push you a little. I would start at a teaching hospital and be totally honest. Look for someone to do things with and get some exercise. Take a hike with a friend. Get out of the house and try to talk with others. I remember my son asking me one time to make him do things. I took that to mean he really didn’t feel like it and needed an extra push.

We do care about you and I was thinking about you last week. I am a believer and will continue to pray for you to feel well again.

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@Andy - I agree with Hope - go to the ER. Life is worth living - hey it’s almost spring! I know depression is real and I hope you can find something that will help. Have you told your Mom or someone close that can help? I believe you said you have a girlfriend. There is a supplement called Sarcosine which you can add to coffee/tea/smoothies that seem to help some with depression, although you may need something stronger.

I just recently learned about a new form of pot called Spice/K2 so I’m on a soapbox about it - I hope you aren’t using that. It has side effects that mimic sz. We all hope you stick around.

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Thank you all for your support. So I have been taking lexotanil and olanzapine for a while now. But all this time I have had this one idea in my mind - maybe I am not ill at all. Because in some cases people are having some kind of side effects after using marihuana, and for me it sounds like what I had. I am feeling better now, I want to stop using those medications, because they make slower and I don’t want to get addicted to those pills.

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Hi Andy,
Glad you are feeling better! I wouldn’t quit the meds yet. Talk with your doctor first about bothersome side effects.

The psych drugs are not addictive, so don’t worry about that. You’ll need to titrate down, though, with the help of the doctor.

Are you using mj now? (NOT judging.) Are you saying you feel better having stopped?

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Hi @andy.d,
I’m really glad you are seeing a doctor. Talk to the doctor about what you posted here. Even a drug related psychosis benefits from treatment with medication.

Your doctor will most likely keep you on for a short period of time. Then the doctor can help you taper off the medication safely. It is really important never to stop taking psych meds cold turkey.

Also, tell the doctor your concerns about side effects like being slower. My family member worked with the doctor until the benefits of the medication far surpassed the side effects.

I’m so glad you are getting yourself to the place where you want to be in your life.

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Andy, my advice is take it slowly. Go back and read your old posts. If you are better than you were then, it is highly likely the meds are helping. There is so much research in catching this in the early stages, I commend you for that ability to seek help. Find a support system around you that have experience in this. I’m glad to hear you are doing better. Take it a step at a time and be careful to talk it over with your doctor before ending any of your meds suddenly. Be well!

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It’s has been a long time since everything started. Some of the symptoms has gotten worse, but I feel fine at the moment. And few days ago I got my diagnose - disorganized schizophrenia (hebephrenia) and depression. But I think it could be worse than that. :slight_smile: Atleast I have started new medications, I hope that they are going to help me get through all of this.

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