So we are working out the fine details of discharge for my son, and although I have temporary Guardianship (hearing for permanent Guardianship is April 12th), I am trying to decide what I want to be in this relationship with him going forward.
I will be his care provider initially and will provide him with a place to stay, but he/we both desire for him to get independent again. I am contemplating letting Guardianship go and instead working on our relationship going forward with only Durable Medical Power of Atty (DMPoA), and HIPPA auth in place. He is willing to sign DMPoa/HIPPA for us to have access…but he feels very violated about Guardianship and the Involuntary Hospitalization process we went through to get him hospitalized. Does anyone have any thoughts on this?
After nearly 60 days in the hospital, we are starting to make gains in his recovery. We are looking at the end of the month for D/C. He still has little insight, but he does state that he “feels better”. He still is not completely convinced he needs medication, but he does acknowledge that he is clearer having been in the hospital. After another change in medication dosing last week, I actually saw a glimpse of him for the first time in over a year. Because we struggled to get him to take any medication in this journey after his initial diagnosis and first-break psychosis, we are seeking a 6 month CTO/AOT following discharge, and will likely have that in place before he will discharge home.
For those of you that don’t know our story, we are extremely rural (100 people in town, a handful his age, no work opportunities, 70 miles from a grocery store, 1.5 hours from case management/therapist/etc.), so our goal is to get him into a location where he can have some independence and support services as quickly as possible. There is an option to D/C him to a community instead…but he is not set up financially with SSI (we are working on that), and we cannot afford to get him an apartment or maintain him elsewhere.
So…as we approach this…and without knowing what level of independence he will be able to maintain, and with the relationship in a state of necessary repair, would you press Guardianship with it’s court date in the two weeks after discharge?
Our need for Guardianship initially was due to him not being willing to allow us any information/access about his care, with the DMPoA/HIPPA, we accomplish access related to him being ill. I just am not sure what to consider, but our goal is to have access when he is ill, preserve the relationship overall with clear boundaries…but I do not necessarily want to police his decision making.