Funny how when I say to my son, “let’s do something next Tuesday” or “I have this planned for next Tuesday”, he will say, “no thanks, I don’t want to” or “I’m not doing it”. But come next Tuesday, if I call him the day of, maybe an hour before the activity, he will say yes. He doesn’t always say yes, even at the last minute, but I’m finding the odds are better for me of him saying yes the day of.
It’s like we have to have an immense amount of intuition and insight and understanding and compassion AND patience just to be able to do normal things other families take for granted. It’s hard work and it’s exhausting trying to stay in the same world they’re in and let them know that we are ok with “the way they are”. I think trust is everything, once you have trust, it opens so many tiny doors. My son doesn’t talk a lot, but I still understand him, and more importantly, he knows I understand him.