My son 25 has been having paliperidone (think its inveiga) in the USA? we are in uk.
He still believes there is nothing in the syringe, he complies the bare minimum with his Nurse who comes to give him the injection, he will have a chat but bare minimum, its me that is always there as he wont go out and meet her out side our house. I take all the appointments and write them down, he does nothing .
Same with letters from DR or hospital I am the one to do it all,
He never abused alcohol in the past but had the odd binge like most men here his age.
A few weeks ago his psychiatrist and CPN came out to visit to ask about the meds etc, he spoke a lot about in the past drinking too much and it was that to blame (anything other than his condition, illness etc)
Had a good christmas with minimum delusional talk, except the odd comment about him going to be kidnapped and taken away from us, which i hugged him and reassured him no it wont happen, then he was fine. His nurse and dr have asked him again why he wont have a blood test and he replies incase they sacrifice his bloods. He should have tests ecg etc but wont.
He has no motivation to go out, he wont even walk the dog, but a couple of nights ago he asked me to drive him to the shop for some beers, (he had his injection that day) I said nope I was busy , had lots to do, so he actually walked there, (only 10 mins)
He came back with a pack of 12 beers, I said I hoped he wasnt going to drink them all, he replied no some are for the next night. He had 7, no problems etc.
The next night (last night) he drank the remaining 5 then he put his coat on, I asked him where he was going, he said more beers, now we know this exasperates him at times, so his Dad and I said no we thought he had drank enough, could hear his voice slightly slurred, they are small 330ml bottles, but I felt 5 was enough, after all he is sitting in his room drinking alone.
He created a fuss, and hubby ended up saying he wasnt going to let him in if he came back with beers, I ended up retreating to the bedroom at 8pm. He came back and hubby did let him in after a fuss. He also had sweets, chocolate and crisps with him. A lot !
This time another package of 10 bottles, hubby and him had an argument, Husband is a very non argumentative man. Son started ranting about us “taking” the doctors sides, Saying we let it happen to him, he isnt ill, its not meds in the syringe, Its his money to buy beers, I said I wouldnt have given hi £50 for his birthday 3 days earlier , I said I gave it to him to get a haircut, look nice, buy nice clothes etc.
It went from bad to worse, he drank I think 5, so that was 10 all in last night.
Honestly it was like going back to the days before the hospital stays and what our life was like before when he wouldnt do a thing to help.
He has no motivation , he has a good degree in business management and says he has worked and done his bit and because its all been taken from him this is his life now and for the rest of it.
When his nurse comes out to him, she offers, social groups, gym, talking therapy and he is not interested, he spends all his time in this house with us, its suffocating for us, he has no friends either, he did visit family at christmas with us , his grandparents.
So I don’t know I am back to thinking is he ill or is this is true personality, ?
He is currently on a CTO which is a community treatment order meaning he has to take meds and comply or he could be recalled back to hospital, thats under review soon, and if he is taken off it he wont take meds and I feel it will spiral again to us making him move out like we did 18 months ago.
Sorry for such the long post, I think hubby and me have to go out and spend time out of this house and think of us today.
Thanks if you have got this far .