I remember first discovering this site. Even before you’re a member, you can see everyone’s stories and comments because it’s set for public view. I stumbled across a story that resonated so much with mine ( I wish I could remember the username of that mom). She was talking about how it was just her & son, all alone, and her being a FT caregiver, how she had let herself go, how she felt like she had to rush home from grocery shopping just so that she could keep an eye on him. That it was a hellish life, and she was beginning to question if this was all worth it. That story captured me. I remember thinking, “omg, do other people like me or in my situation really exist?”
I was just simply trying to learn as much as I could about sz. And to be honest, when his his social worker called me from the hospital to give me his diagnosis, I did not know what schizophrenia even was, nor the implications or the repercussions. I was trying to find out as much as possible, and of course, it didn’t take long to realize my son fit into the mold perfectly (all of the negative & positive symptoms, along with certain physical characteristics from speech and the scary stare to the dark black eyes when in psychosis).
I had to reset my phone today, and went into panic and almost had a heart attack when this website got accidently erased from my searches.
I just wanted to say I’m thankful I found this site. Misery loves company and hearing about others’ similar struggles (some worse off than my son and some doing alittle better than my son), makes it alittle more bearable.