Dear Hope, I seem to be posting on a few threads, if you search my name Maggie46 it may show them.
Feeling exhausted today after 3 days of chaos in our home… 
it’s so comforting to know and chat with other people who are on the same journey.
Warm Regards,
M46
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Hi Maggie46, Those days of chaos and isolation are more difficult than other people could ever understand. Thanks for being patient with me as I try to get up to date. I saw that they have tried several meds for your daughter. Have they tried clozapine yet?
Best Regards, hope
Dear Hope,
As N suffers severe Epilipesy (currently doing well 
) Psychiatrist treads carefully with her meds she’s had a cocktail over the past two years with absolutely no improvement.
Seroquel …no change
Zyprexa depot injections…no change
Risperdol 8mg no change
Dr withdrew all the above drugs as she agreed with me they were just poisoning her with no results.
3 weeks ago started slowly on Haloperidol…Mirtazapine with no improvement… we see the Dr again next week.
Thanks for the chat Hope… I can honestly say this site is helping me understand and find out so much info during this sad and painful journey. Until I stumbled upon this i was on my own.
Warm Regards,
M46 
Hi Maggie, We have a double health issue as well. My son has a kidney transplant (currently doing well). I’m glad that your daughter’s epilepsy is also doing well - these things can change rather quickly for us, (I suspect for your daughter as well?) we just keep hoping that the kidney doesn’t change its status.
I’m glad her psychiatrist is being careful and is still trying to find something that will give your daughter some relief from the symptoms. So frustrating that your daughter is willing to take meds and isn’t getting any help from them. I think Clozapine is usually the last med the doctors will try, it can have some tricky issues of its own, but it can be quite the lifesaver.
I’ve been to Australia, your coastlines are absolutely gorgeous!
Best, hope
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Dear Hope,
So good your son was able to have the Kidney transplant and with success let’s hope it continues, how is your son doing with his delusions?
Nik is not at all happy with the anti psychotic drugs prescribed for her as she had always been into natural foods and a very healthy organic lifestyle, the Dr gets around it by telling her the drugs are a type of dopamine and will help her nightmares… she no longer uses her phone or the computer (both devices have been compromised and her security is at risk!!) so does not have any interest or motivation in looking at what the drugs are really for.
What part of the US are you from?, take care today Hope and thankyou for the chat.
M🦋
It’s the same in our home Margi.
Nothin changes..
Maggie46 
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I recently talked to a senior aged woman caring for her mentally ill daughter (who used to be an electrical engineer) and found out that suddenly, the daughter who wanted no medication, was willing to see a psychiatrist and get medicated. She has been delusional and hallucinating voices and “talking” computers for 4 years now. The first medicine she tried is helping, and both of their lives are better now.
Even when unmedicated, the daughter slowly came to terms with the mother to make their living together better for both of them.
Change is possible, usually slow to come, but possible. Keep hoping, and keep taking care of yourselves too, as well as taking care of your loved ones.
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I am so so sorry for your loss. As a nurse of 35 years, my opinion is this is the worse disease ever. My son OD’d once on Valium he bought off the internet. He bought 300mg. 1 pill didn’t relieve his symptoms…2 pills didn’t… ended up taking the whole bottle. We found him seizing in the bathroom. He was on life support for 3 days. These kids go through hell with their symptoms. I honestly think I would do the same thing. I’ve had 2 friends who lost their children to schitzophrenia. Your son is at peace now, brain healed… no more suffering. Again , so sorry for your loss.
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My son will be getting 350 mg Invega Trinza this week he was on 75 mg Invaga sustaina
I think that 350mg is to strong. Has anyone loved ones taken this drug and how did they do on it any bad side effects.
Margi, a pharmacist can be a really good source for information. I hope the link helps.
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Thanks hope I did check with the pharmacy there was a mistake in the script. My son got the injection 263mg for 3 months yesterday. My son is saying that I am murdering him. He does nothing but look up the sidefects.
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I hope that the injection helps him gain some clarity in his thinking. It appears that the doctor is titrating upward and perhaps will stop at this dosage. It takes awhile to build up. Keep detailed daily notes about your observations so you can share with the doctor, as needed.
Margi, I am so glad you checked with the pharmacist!
My son started taking abilify and has been vomiting about half hour after taking it and has been very nauseous.
I am sorry Margi. 
Yikes. What does the prescription say about side effects? Did you contact the doctor? Did it get better?
People can be anxious to the point of vomiting. Given your son is highly anxious about side effects, could it be the fear of having a reaction to the medication rather than actual side effects?
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I spoke to the doctor he said that he should stick to it that it should pass and that abilify works really well with the invega trinza. He hasn’t been sick now for two days so I am keeping my fingers crossed. It doesn’t help that he is a chain smoker and drinks coke at all hours day and night. He doesn’t believe that this would contribute to any of this. You just can’t reason with him. He has put on about 50 pounds but drinks coke and eats lots of sweets. Thanks for listening. I have no one in my family that I can talk to.
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Good luck @Margi. I hope things settle down with the Abilify.
Sugar definitely impacts my son in a negative way. He now recognizes that it makes him feel temporarily “depressed”.