I’m glad this forum is here. I need help finding a knowledgeable therapist to work with online, one who knows schizophrenia and the current understanding of it well, who knows and can coach me in CBT/DBT, and can help me both with my grief and with doing the best I can for my son going forward. Some telehealth situation where we could meet every couple of weeks, someone who already knows about severe mental illness unlike so many others I’ve come across in the last 20 years. Ideally a telehealth situation that would take my BCBS insurance, but private pay would also be an option. I’ve been so disappointed so many times with behavioral health providers in my small community, people who know so much less than I need them to. I want to pour my heart out talking to one person, to explain enough to be understood, and then be able to go deeper. I’d be grateful for any ideas.
My son is 27, and I’ve just been visiting him in at his house in South America. After twenty years, it’s clear to me he’s living with schizophrenia, which has been suspected though he’s not been diagnosed with it. With anxiety, with high-functioning autism, with PTSD, yes. But his life is finally less chaotic than it’s been for years, and what remains looks like classic schizophrenia. Yes, the positive symptoms, the delusions and psychosis, but also the negative symptoms, extreme disorganization, anhedonia, disorganized thoughts. It’s tragic, so tragic. I could tell the whole long story, but I’m exhausted. He has always refused diagnosis and medications. I’ve read “I am not sick, I don’t need help” many times, I’ve taken the NAMI family-to-family class twice, etc, etc, etc.