My son just left Home after 5 months of Hospital and Rehabiliation

My son is still in Hospital and seems like a path is opening up. hoping the year of 2018 is a good year for us.

I am able to talk to the health coordinator/Social worker regarding my son treatment. my lawyer will be adding one more statement to my Guardianship document so I can have the power to give consent for my son to talk monthly shots or medicine.

there is a possibility to conserve him for 4 to 5 months in a facility.
I had contacted the CEO of the county hospital where he is now at and she has been helping me.

I am praying about all this to happens so i can have a peace of mind for a while.

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I will pray for your to receive care that will help him. And for you too, so you can know he is cared for.

Thank you for the update; I’m glad there’s some hope now.

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That is great news. I’m glad he is safe and they know someone cares about him.

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This is really good news CAAR 2016, so glad you are finding people who are actually helping you. Your persistence is paying off. More prayers headed your way.

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I know the future path will be not be easy and may get bumpy and I may get to a road block
but I need to keep the hope up and be persistent as hope suggested.

Thanks God that I can sleep better now.
Thanks for all your prayers.

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You are truly an amazing warrior MoM!!

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Hope, This quote by ( Herschel Hardin 1993) is a quote that should be posted in every mental court and in every mental hospital.

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Mom2. aren’t we all trying to protect out children! hoping your son gets better in the hospital and will be more rational when he gets discharged and willing to accept the meds…

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Dehydration can happen really fast, in less than 3 days, I am finding. The dehydration can lead to severe muscle pain and cramping plus bad headaches. They Have to drink a lot of fluids to keep the meds moving through their body properly. It’s just a must, no matter what the med is. Depending on their weight will determine how much water (general rule of thumb: weight /2 = ounces of water per day roughly.) At 80 lbs my daughter should drink 40 Oz if water a day. I can usually get about half that. I get my daughter 1 liter bottles so I can keep track easier. She can typically finish about half of one a day right now, I am trying to get her to finish one a day (10yo). She ended up with a UTI because of not enough water. It takes time to get them used to that much water. Eventually their body will crave it and send thirst signals to their brain more often, which should increase their natural intake. Initially it’s just a lot of encouraging.

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Son is on Seroquel…which has muscle and heat warnings.
He gets headaches too.
Sweats most wickedly.
Says it hurts to move…that’s been the complaint for years. He has gained a lot of weight as a result.

I forget occasionally about the need to increase water.
I do have to force the issue of drinking. He can get so peeeeved when I put a glass of water down next to him. I have to ignore that part. Carry water everywhere, and keep bottles in my purse or car. If he goes into a psych break, he sweats profusely, and then is slammed with a headache. May be related or not…I think it is.

He will also binge on sweeties. I found what appeared to be an entire can of frosting…even the foil was in place. I thought…it was empty underneath. I was standing next to husband when we discovered this…just 2 nights ago…and all we could do was look at each other. I mean: he put the foil back over and put the container back in the cabinet…after we went to bed.

More night checks…less purchase of sweets.

Anyone else with the sweeties?
Fluids…a biggie.
Thanks for the reminder.

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Squid, not sure about seroquel but my son gets better on Paliperidone and Invega-shot. but since he is non-compliant, he is always ending up back in hospitals.

Water is always the best of every situation… at least 6 to 7 cups a day.
you are doing the best for your son. you are blessed that he is at home with your family.

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Fluids are huge, 2-4 days is all it takes to get dehydrated on these meds and they don’t process properly. I am really seeing this in my daughter right now. Proper calories are key too. Not eating enough can cause psychosis (Lithium did this) or a zombie like state. We are going to try and consult a nutritionist for help. Anyone wanna guess whether insurance will consider it medically necessary? Lol

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Good plan on the nutritionist. Can this be something you being her in on too?

Oh for sure, it’s all for her benefit. I just have to find one. Lol

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My son is 31. He is schizoaffective. He was diagnosed in his second year of college.
It has been a roller coaster ride. He has used pot now it is cocaine and won’t stop. He gets a
shot every two weeks, but will not take any oral meds. He lives in a transitional home now. He
lived with me in the past but has been banned from where I live.

I hate this horrible illness and wish there was a cure.

Stay strong everyone.

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I am so sorry you are going through all this. I will keep you in my prayers and hope he stays safe.

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I know this is very hard. my Son is now in Hospital In CALI and he is under Temporary conservator ship in California. he is taking the monthly injection but not taking oral medicine.
I can tell see that he is still sick and now demanding that I will buy him a Condo in California and a Car as soon as he is dismissed… I hope he will stay in Locked facility for a while to get more stable…

I have talking to his public Guardian and they are going to help to keep him into a Locked Facility

he will have a hearing to contest for his conservatorship and I am hoping he will not win and Judge will be convinced that he needs more treatment.

Keep praying about it.
I am praying for your son roseo…

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That’s really good news. My son has been med-compliant for 2 years now and gets more and more insight as time goes by. But he only started taking meds after he was involuntarily committed and they made it a condition of his release that he agree to six months’ long-acting injections. They also pointed out that if he was committed again they could keep him for up to two years and place a Community Treatment Order on him. After six months he decided to continue with the LAIs. A while ago he said he wanted to try to switch to tablets so he could gradually decrease the dose. I agreed to support him if he did it in consultation with his doctor. He tried and after a few days, he started on LAIs again - said he kept forgetting the tablets. He’s remained on them ever since. He recently applied for university and has been offered a place. So, I’m all for involuntary commitment and obligatory meds!

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Hatty,
My son still do not have insight. he is on his monthly shots but not taking his oral medicine.
he will be transferred to a high level care Hospital Like state Hospital according to His Public guardian for a short period to get better before he is assigned to a locked facility or Group home.
I am kind of worried about the high level care hospital; worried about what kind of care will he get. I also worried if he will be placed in State hospital, would he placed with others who repeat offenders…
I am keeping a positive attitude and once I know what hospital, I will be making calls to stay on the top of his treatment as much as I can.

Does Anyone here have experience with someone who has been at State Hospital level?

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case, my son has been in the state hospital several times. It is better because it deals with serious mental illness and they can get better. They are kind and considerate. I would rather he go there straight away than transferring from place to place. They do have programs and groups.

What questions do you have?

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